Am I supposed to just stay home until I'm symptom free?
 

My neurologist said ..."do what you can handle"....that's pretty open ended...and I can handle a lot at the time..but then suffer later. I know I need to figure it out..but even with a log things vary. Sometimes I wonder is it the medication...did my bad allergies make me more tired today etc.

Then another neurologist said "don't do anything that brings on the symptoms" == LIFE ...walking talking, reading etc brings it on..so what do I do sit in a chair all day??

I'm at a loss!

I hate to say it but yes, i think so! I've been doing only the things that don't flare up symptoms. Well, not true, but that's what I've been TRYING to do. Too hard to do it 100% - life has demands.

yes..and those demands are my 2 sons at home and daughter coming home from college in 2 weeks.

I can barely tolerate anything...even conversations -- parents were here for mother's day yesterday for a few hours and i sat in a chair...a mess exhausted today

I can really relate to that! Conversations take a lot out of me and can leave my head buzzing for hours afterward.

My biggest struggle 14 months out: As I heal, I do more, then pay for it by taking steps backward. Who thought that just trying to visit with people could still do this?!

Just started with a new psychologist who is a brain injury specialist. In the midst of testings and then will get his suggestions. If there is anything helpful, I'll post here.

So far it's just a journal of what happens and how I feel. Overwhelmed is a running theme so far, but it's been an unusual week.

My horse had an eye injury and it's all I can do to care for him, let alone other things. I am good with one thing in front of me at a time, but switching gears back and forth is taxing.

Every time I think this is finally done, something wipes me out again. My life as an "over achiever" has to be done, but it's hard to change the habits and self expectations!

It really stinks but... resting all the time is the best thing you can do for yourself right now. That way your brain has more time to rest and heal.
But at least after a while you'll be able to gradually introduce gentle activities in your days, such as watching TV, going on gentle walks, talking etc. Though you shouldn't get into sports or any rigorous activities involving intense shaking of the head until you're completely symptom-free, as that could cause Second-Impact Syndrome.