Found my way back
 

Done moving and at last have some energy to get my computer up. Tried to start last week as I have a new internet provider but some weird stuff happened so this is first day I could try again.

Much much has happned. I have alot worse Sjogrens symptoms today so cant stay long now. I have trying to figure out how to manage the air conditioner, this new place with an extra bedroom with my 3 humidifers that keep my dry eye and nose from going into pain. So far no doing well. It is taking more strength than I have. Strenght is down alot since moved.

So glad to be back.

Annie

I NEED my TV! But I have to say I am grateful for the few days I had of the new provider stations I had at first. I think my humidifers have messed up my TV. I just hope hope it is temporary. I got to see some movies before it died that I had wanted to see and one I had no interest in (Twilight and the next one in series) that was an interesting surprise. There is a piece of classical music in the first one that now keep going thru my head. Single piano. Very sweet and haunting.

I feel embarrased for some reason to need myTV so badly. It is just the only thing that can be noise and visual when I am alone so much and in worse shape. I hope someone can understnad this. My oldest daughter called and I learned that she was trying to get her to bring one TV from there for me. I said I am sure all is too raw from the weekend to expect that to work. She said she would get the one she has over as soon as she could. She seemed more relaxed maube from being out of town today. I still have to talk to her and try to get to understand that I can't make all the calls that are needed this week. I started out with 2 that got alot done but my breathing has been worse since even affecting my sleep since. Usually it takes more than on day with 2 long calls to do that. It reminded me that I just moved and last time I moved I kept going and had the first big crisis about 2 months later.

I want to find ways to keep from that path. I did apoor job yesterday by crazily plunging in and helping so my aid could get more done. It was like I forgot who I was. But mostly I just needed clean laundry very very badly. This comes under the other bady needed issue. If she takes me for fluids now that consumes a whole appoitnment and groceries and laundry dont get done. Just getting here we learned the first week that the dryers dont work at all. And sadly one still is in just as bad shape. Kara is a real good problem solver so she said she could put the 2 loads in and do a cuple things till they are done as they do that well and then take it with her and drop at laundromat on the way to groc store and pick up on way home. So glad SHE is thinking well!

Annie59

Annie[/QUOTE]

moving
 

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Hi Annie, I just moved last month. I have been worse since. Does this disease ever get better? I wonder where is our quality of life? I do anything and I feel so bad the next day. I pay for it dearly. I am sitting here on the couch not even wanting to type, but I need to say some things. I think about my future and I say what future, I won't be able to do the things I want. I have always wanted to go back in to camping with my husband. I loved it before having to raise my grandchild. Now I wonder, will I be able to enjoy it/ Will I just be in bed all day in the camper instead of out enjoying it? Does anyone else feel this way? i know there are other diseases much worse than this one. I should be ashamed for complaining. God forgive me, but I feel like the living dead.