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-   Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)
-   -   disappointment (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/150337-disappointment.html)

amyb20 05-16-2011 08:40 PM

disappointment
 
I had a ganglion nerve block today at 2:30, worked it as much as i could, and my pain came roaring back about 30 minutes ago...very disappointed with how long it lasted... wish it lasted atleast a full day :(

daniella 05-17-2011 04:53 AM

I am sorry. I know when my block increased my pain I felt so down. Do you have a plan now for treatment? Many people don't respond well to the blocks. I know it does not make it easier but maybe talk to your doctor about other treatments. Hang in there

birchlake 05-17-2011 06:50 AM

Amy,

Sorry to hear that you are not getting much relief from the blocks.

I did not respond at all to sympathetic lumbar blocks for my foot either.

As mentioned, what is your plan moving forward, and who is "guiding" you as your primary CRPS doctor? I think it is important to have a primary doctor who leads the way if you will, through options. But along with that primary doctor, you need other professionals involved in your care. That may include a physical therapist, massage therapist, neurologist, pain management doctor, etc. Best to take a "multi-disciplinary" approach to CRPS. Studies have shown that people that apply this strategy have better results than treating with a single doctor.

amyb20 05-18-2011 02:52 PM

thanks, the first two blocks worked for 8 hrs / 5 days, so i was hoping my 3rd and 4th would go even farther... my 3rd didnt work at all...and this 4th one worked a few hours....now my pain is worse than its ever been :( ... i have an appointment with my pain management dr June 2nd, a neurologist next week, and i have physical therapy once a week - id do it more, but with my insurance it gets very expensive .. my primary dr knows of RSD, and has pointed me to all the other professionals that are good , he just doesnt know much to help me himself, which is understandable - ive had to fight to get all my appointments so quickly...they wanted me to wait til the end of august, when i made these appointments 2 months ago! i hope i can find a different plan of attack, now that i know my shots arent helping me


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