NeuroTalk Support Groups

NeuroTalk Support Groups (https://www.neurotalk.org/)
-   Myasthenia Gravis (https://www.neurotalk.org/myasthenia-gravis/)
-   -   just a nice success story (https://www.neurotalk.org/myasthenia-gravis/150369-nice-success-story.html)

Stellatum 05-17-2011 09:50 AM

just a nice success story
 
http://www.urmc.rochester.edu/news/s...ex.cfm?id=3202

I like to read stories of people with MG who actually got the right treatment and diagnosis right away! I didn't know that in children it's more common to be seronegative (the article says one half!). Also, it seems to suggest that a thymectomy makes more sense for young children.

Abby

marie123 06-14-2011 02:09 PM

I like to read stories of people with MG who actually got the right treatment and diagnosis right away! I didn't know that in children it's more common to be seronegative (the article says one half!). Also, it seems to suggest that a thymectomy makes more sense for young children.

Abby[/QUOTE]

I had a thymectomy young. Probably about age 7 or 8. I don't even remember. I haven't read this yet but I am going to. I don't know if this maybe have prolonged the inevitable at all but I've only had the problems with my eyes up until age 18 under severe stress I had weakness from head to toe.

I am back to relatively full strength now. But I am terrified of an eye surgery. I have severe ptosis on one eye and my eyes are turned in. I've lived with this for so long I figure why get the surgery? I can't have the surgery to lift my lid because he's scared that it'll dry out my eye :/ that is the main one I wanted to get done.


All times are GMT -5. The time now is 06:14 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.