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-   -   MS is winning the battle :( (https://www.neurotalk.org/multiple-sclerosis/150578-ms-winning-battle.html)

D0ct0rT 05-20-2011 09:41 AM

MS is winning the battle :(
 
I really feel like MS is slowly winning the battle. I can't walk well at all, forget too much, and am sleepy all the time. I'm really worried. Work has been very stressful lately and I feel like I can barely function sometimes. I've tried and tried to follow my ethics to not be a whiner but I need to let somebody know how I feel like I'm losing this battle. :(

Kitty 05-20-2011 09:46 AM

Sorry you're having such a bad day. :hug:

Have you mentioned any of this to your Neuro? Does your employer know you have MS?

Maybe you could take a few days off and regroup. Sometimes a change of environment helps.

Be sure you're getting enough vitamins....especially B-12 and D-3. I cannot emphasize how much those two supplements have helped me.

D0ct0rT 05-20-2011 10:07 AM

Thank you Kitty. Yes, they do know but not all of them from me. Thank you for listenting to my boo hoos! I was off two days since I was not able to get out of bed. :( I can't wait for this weekend.

SallyC 05-20-2011 11:51 AM

I hear ya, Doc. Take a deep breath and say, "in with the good" when you let it out say, "out with the bad" .. I do that, some days, a lot.:D My mind tells me it's working...sort of like a self-hypnosis..:cool:

:hug:

D0ct0rT 05-20-2011 01:03 PM

Hi Sally,

Yes, deep breathing is good. I need to do that. Thanks the the reminder. :)

viseeu 05-20-2011 01:50 PM

hi Doc, I'm so sorry to hear you're feeling like MS is winning the battle... you said one thing that I feel I really must comment on:
Work has been very stressful lately and I feel like I can barely function sometimes

I was dx in August of 2000 and went back to work the end of September 2000; I eventually got fired from that job and within a couple of months had another job; the stress went up and down at the first job but went from constant to worse on the second; I got fired from the second job in April 2004 and applied for SSD as the stress was causing exacerbation's of my symptoms, increasing cog fog, mental/emotional/physical fatigue I could never catch up to... I went on disability in August 2004 and over the next couple of years felt dramatically better across the board and it showed up in my bi-yearly neuro exams too--within 2 years my disability scale went from 3.5 to 0...

So, until I got fired and went on disability = no job stress, I felt like my MS was winning too. Is there any possibility you could apply for SSD and stop working? I don't know what kind of work you do, but I know my line of work could be terribly stressful and as much as I loved it, I had to stop working.

We all know stress is one of our enemies and I hope you can find a way to eliminate some and feel better~
:hug:

AynaDee 05-20-2011 04:10 PM

:hug:D0ct0rT:hug:

We may lose some of our battles to MS but we will always win the war! :icon_twisted: muhahaha!

I'm sorry this disease is being so unfair to you and I'm sorry I have no advice to give.
BUT
I do have plenty of HUGS (the fun kind, not painful kind :o) :hug:

NurseNancy 05-20-2011 04:41 PM

i really understand the work issue and how hard it can be to push at your job til you can't do it any better. i had to quit my nursing profession of 35 yrs in '05 after at least a yr of pushing til i thought my job was killing me. my BP was thru the roof from the physical effort of it all. it was just too physically demanding. and then there was the cognitive. that's when i really knew i had to leave.

try to look at each problem and see if you can find an answer to it. you will
probably have to do this with your dr.

checking the B vits and vit D is very important. can you take something for the fatigue? and there may even be something that might help your cognition.
is there anything that would help you that you could change at your job?
if your employer knows you have MS there might be some reasonable accommodation they could grant you to help. that's the law under the americans with disabilities act.

please let us know how you are.

D0ct0rT 05-20-2011 09:31 PM

Quote:

Originally Posted by viseeu (Post 772224)
hi Doc, I'm so sorry to hear you're feeling like MS is winning the battle... you said one thing that I feel I really must comment on:
Work has been very stressful lately and I feel like I can barely function sometimes

I was dx in August of 2000 and went back to work the end of September 2000; I eventually got fired from that job and within a couple of months had another job; the stress went up and down at the first job but went from constant to worse on the second; I got fired from the second job in April 2004 and applied for SSD as the stress was causing exacerbation's of my symptoms, increasing cog fog, mental/emotional/physical fatigue I could never catch up to... I went on disability in August 2004 and over the next couple of years felt dramatically better across the board and it showed up in my bi-yearly neuro exams too--within 2 years my disability scale went from 3.5 to 0...

So, until I got fired and went on disability = no job stress, I felt like my MS was winning too. Is there any possibility you could apply for SSD and stop working? I don't know what kind of work you do, but I know my line of work could be terribly stressful and as much as I loved it, I had to stop working.

We all know stress is one of our enemies and I hope you can find a way to eliminate some and feel better~
:hug:

Hi Viseeu,

I don't even know where to begin with SSI. I need to do some research and figure out what is needed. I've been under immense stress for about 7 months from my new clinic. I've tried to talk to her directly and that didn't work. I am well liked by people at work, she has already fired the whole medical staff, a dentist, and is now working on getting me fired. I just keep my head down a do a great job but it's still stressful. I need less stress for sure. Thanks and nice to meet you. :)

D0ct0rT 05-20-2011 09:33 PM

Quote:

Originally Posted by AynaDee (Post 772260)
:hug:D0ct0rT:hug:

We may lose some of our battles to MS but we will always win the war! :icon_twisted: muhahaha!

I'm sorry this disease is being so unfair to you and I'm sorry I have no advice to give.
BUT
I do have plenty of HUGS (the fun kind, not painful kind :o) :hug:

Hi AynaDee. Thank you for the hug. :)


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