NeuroTalk Support Groups - Failure to Thrive

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Failure to Thrive

I wanted to post a thread about this because even though gluten was a HUGE part of my son's problem, I am still searching for the final answer bits... as I'm sure other parents are:

http://www.ncbi.nlm.nih.gov/entrez/q...=pubmed_docsum

I wish I could see which foods the child was reacting to.

Quote:

Food protein sensitivity with partial villous atrophy after pediatric liver transplantation with tacrolimus immunosuppression.

http://www.ncbi.nlm.nih.gov/entrez/q...arch&DB=pubmed

Quote:

The diagnosis and management of cow milk protein intolerance in the primary care setting.

Here's a really good one:

http://www.ncbi.nlm.nih.gov/entrez/q...=pubmed_docsum

Quote:

Food protein-induced enterocolitis syndrome: case presentations and management lessons.

Quote:

The disorder is generally not associated with detectable food-specific IgE antibody. There are increasing reports of additional causal foods, prolonged clinical courses, and onset outside of early infancy, leading to description of a food protein-induced enterocolitis syndrome.

This is a really great site that not only offers products but also gives some really good advice re: trying to put some weight on (esp. children). I ran across it by mistake today when looking up arrowroot info.

http://www.specialfoods.com/weight.html

Quote:

When Your Child Needs to Gain Weight
By Karen M. Slimak

...

8. Eat more frequently. The stomach empties every two hours, so if you are having trouble getting your child to eat enough at meal times, increase the number of meals (complete meals, not just snacks) to as many as you need, up to as often as every two hours.

9. Encourage your child to chew his or her food thoroughly. Calorie intake can be increased by more thorough digestion. Especially for carbohydrates, critical digestion begins in the mouth. If the food is swallowed quickly, this vital step can be missed. Tell a child to chew each bite until it tastes sweet. All carbohydrates become sweet when the digestive enzymes convert them to the more simple sugars. The sweet taste lets you know that the food is well mixed with the necessary digestive juices and that chewing has been long enough. It is very hard to chew a large mouthful of food, so encourage your child to keep the bites to a manageable size....

...Sweet potato breads, muffins, crackers, cookies and nut butters are particularly appropriate for promoting weight gain. The best of all is the white sweet potato nut butter. Made of only whole white sweet potato flour and oil, the white sweet potato flour is moistened by oil instead of water, producing a nut butter substitute that is high in complex carbohydrates and soluble fiber as well as fats. This makes it an easily digestible, highly nutritional and highly caloric food. Spread on a dense piece of bread or on dense crackers, and with added jams, the result is the maximum number of calories possible per bite, and some super great taste!
The sweet potato nut butters and other imitation nut butters from Special FoodsTM were specifically designed to provide the highest calorie content possible per bite while also providing nutritional balance..

Wow! I just read her story. It's a good one that parents like us can really relate to!

http://www.specialfoods.com/inspiration.html

Thank you, Kim! Good stuff!

Rachel

Interesting site - thanks Kim.

I thought I had heard about every GF flour but she makes flour out of everything. Here is the list for the tortillas. She also uses papaya, mango and starfruit.

Quote:

White sweet potato tortillas
Water chestnut tortillas
Malanga tortillas
Arrowroot tortillas
Yam tortillas
Lotus tortillas
Cassava tortillas
Artichoke tortillas (requires an oil)
Quinoa tortillas
Amaranth tortillas
Milo tortillas
Buckwheat tortillas

I will have to read more when I have time.
Anne

DH has bought me water chestnut flour and mung bean flour at Asian food stores.

Rachel

http://www.ncbi.nlm.nih.gov/entrez/q...arch&DB=pubmed

Quote:

1: Indian Pediatr. 2005 Sep;42(9):877-84.http://www.ncbi.nlm.nih.gov/entrez/q...et-linkout.jpg Links
Oil massage in neonates: an open randomized controlled study of coconut versus mineral oil.

Department of Neonatology, LTM Medical College and General Hospital, Mumbai and Marico Industries Limited, Mumbai, India.
INTRODUCTION: Oil massage for newborns is reported to improve weight gain by better thermoregulation. A role for transcutaneous absorption has also been suggested. AIMS AND OBJECTIVES: This study was undertaken to compare the effect of massage with coconut oil versus mineral oil and placebo (powder) on growth velocity and neuro-behavior in well term and preterm babies. STUDY DESIGN: Open Randomized Controlled trial. SETTING: The Premature unit and the postnatal wards of a major teaching hospital in a metropolitan city. MATERIAL AND METHODS: Intramural preterm appropriate for gestational age babies weighing between 1500 to 2000 grams and term births weighing more than 2500 grams fulfilling the inclusion criteria constituted the two gestation age categories studied. Babies in each group were randomized to receive massage with either coconut oil, mineral oil or with placebo. Oil massage was given by a trained person from day 2 of life till discharge, and thereafter by the mother until 31 days of age, four times a day. Babies were followed up daily till discharge and every week after discharge for anthropometry. Neuro-behavioral outcome was assessed by the Brazelton Score at baseline, day 7 and on day 31. RESULTS: Coconut oil massage resulted in significantly greater weight gain velocity as compared to mineral oil and placebo in the preterm babies group; and in the term baby group, as compared to the placebo. Preterm infants receiving coconut oil massage also showed a greater length gain velocity compared to placebo group. No statistically significant difference was observed in the neurobehavioral assessment between all three subgroups in term babies as well as in preterm babies.
PMID: 16208048 [PubMed - indexed for MEDLINE]

This is sooooo interesting to me, Kim. Thanks for posting it.

Rachel

I will have to take some time to read this more thoroughly, because I am always looking to add a little weight to my daughter. On the charts, it say she is underweight. Her doc isn't concerned, but I'd like to see her above the 5% of BMI.

So... I'm curious about this:
sweet potato nut butters and other imitation nut butters from Special FoodsTM

And I agree about the frequent feeding. My daughter doesn't stop to take time or think about food much on her own.... and when I have made an effort to offer her food more frequently...she has gained better.

Thanks for posting, Kim. Great find!

Quote:

Sweet potato breads, muffins, crackers, cookies and nut butters are particularly appropriate for promoting weight gain

I'm going to go on a sweet potato bread and muffin kick! Who wouldn't like that?? (but "I" don't need those extra pounds, so will have to be careful to limit myself!)

Cara

Quote:

Originally Posted by jccglutenfree (Post 39261)

I'm going to go on a sweet potato bread and muffin kick! Who wouldn't like that?? (but "I" don't need those extra pounds, so will have to be careful to limit myself!)

Oh, I know what you mean, Cara!!! That's always been the hard part about trying to make stuff so Colin will gain and yet not wanting to gain myself. He keeps getting taller and taller, but it would be nice if he would widen a bit. It's harder and harder to find pants he can wear.

Rachel