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-   -   hi everyone I am a new member i have had a shunt fitted a week ago. (https://www.neurotalk.org/new-member-introductions/150844-hi-am-shunt-fitted-week-ago.html)

caroline7 05-25-2011 08:04 AM

hi everyone I am a new member i have had a shunt fitted a week ago.
 
Please can you guide me on what to do about the shunt i have had fitted I want to stay well and not have problems

MelodyL 05-25-2011 08:43 AM

Quote:

Originally Posted by caroline7 (Post 773570)
Please can you guide me on what to do about the shunt i have had fitted I want to stay well and not have problems

Hi Hon. My name is Melody

Welcome to Neurotalks.

Here is a great forum for you to go and post your question. Please provide a bit more details so others can give you the correct feedback.

Here you go:

http://neurotalk.psychcentral.com/fo...aysprune=&f=92

All the best.

You'll find we are a nice bunch of caring folk. We always answer questions.

Darlene 05-26-2011 12:22 AM

Great to meet you!!
 

caroline7,

Happy to see you have come to be with us. Just let us know if we can be of any help. There are great and caring friends here to assist you. Our shoulders are here for support in many ways. Please keep us up to date.

Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Darlene :hug:

Abbie 05-27-2011 06:31 PM

Hello and Welcome!
 

Here is a forum link that may be of use to you.
http://neurotalk.psychcentral.com/im...allink_ltr.gif Hydrocephalus
http://neurotalk.psychcentral.com/forum14.html

Please feel free to roam around and join in anywhere!

If you have any questions or need any assistance please don't hesitate to ask... someone will always be along shortly to help in any way that we can.

I look forward to seeing you around the board.
:)
Abbie

Jmeyers 05-29-2011 08:43 PM

new vp shunt
 
I am 40 yrs old & had a vp shunt placed March 31st this yr. I really have not felt "great" since the surgery. I have good days & bad days. I seem to have alot of nausea and have had a headache for 9 days now. Not the squeezing type I had prior to surgery. My recovery was long and harder than what I expected. I still have not returned to work. I have not talked to anyone that has a shunt, just curious how it is for other adults. Wondering if I will ever be back to normal. I can't figure out how to post on here thats why I did this as a reply.

Darlene 05-31-2011 12:15 AM

Great to meet you!!
 

Jmeyers,

Happy to see you have come to be with us. Just let us know if we can be of any help. There are great and caring friends here to assist you. Our shoulders are here for support in many ways. Please keep us up to date. Check out the following forum for some assistance with your need:

http://neurotalk.psychcentral.com/forum14.html

Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Darlene :hug:

res5562965 06-22-2011 12:50 AM

Quote:

Originally Posted by Jmeyers (Post 774791)
I am 40 yrs old & had a vp shunt placed March 31st this yr. I really have not felt "great" since the surgery. I have good days & bad days. I seem to have alot of nausea and have had a headache for 9 days now. Not the squeezing type I had prior to surgery. My recovery was long and harder than what I expected. I still have not returned to work. I have not talked to anyone that has a shunt, just curious how it is for other adults. Wondering if I will ever be back to normal. I can't figure out how to post on here thats why I did this as a reply.

I finally got a correct diagnosis 11/2010 after living with constant severe pressure pain in my head for over one year. I had many symptons one year prior to the pain in my head: constantly sleepy, hearing a clicking noise in my ear, numbness of face and head, confusion, mood swings, problems with walking and balance. I was diagnosed with Chiari I Malformation and Arnold's Chiari. Chiari will show up on a MRI if read correctly. After my Chiari diagnosis 11/2010, I had a MRI study of the spinal fluid in my head. That is when I was diagnosed a few days later with Arnold's Chiari. I had to immediately have a VP shunt put in my brain **(8 shunt surgeries from 11/10-10/11) that allows the spinal fluid to flow to my abdomen. That gave me immediate relief from the pressure pain in my head. However, it did not get rid of the pressure pain in my head when I sneezed, coughed, gagged, or laughed. In Feb. 2011 I had Chiari Decompression surgery to make the opening at the base of my brain larger. I also had to have some verterbrae removed to relieve the "brain tonsils" from being herniated through the small opening at the base of my skull which was causing the remaining pressure pain. This is a congenital condition and the doctors have no idea why I never had any problems from it until age 48. It took several years for this to be correctly diagnosed. I hope this information helps someone that may be having the same problem. Unfortunately my short and long term memory and my eyesight have been affected due to all the pressure to my brain. I still have some pain but at least now it is not constant pain. **nausea is my first sign that the shunt is now working correctly. I have had to have it repositioned, replaced due to malfuntion, and the tube in my abdomen became coiled which caused an infection that when to my brain(19 days in hospital that time). Don't wait...my long and short term memory has been affected. Find a neurologist that will listen to you and don't stop talking until you do. Hope I haven't scared you to death with my story but I want to be honest. God bless you.

res5562965 06-28-2011 08:45 PM

Quote:

Originally Posted by res5562965 (Post 780593)
I finally got a correct diagnosis 11/2010 after living with constant severe pressure pain in my head for over one year. I had many symptons one year prior to the pain in my head: constantly sleepy, hearing a clicking noise in my ear, numbness of face and head, confusion, mood swings, problems with walking and balance. I was diagnosed with Chiari I Malformation and Arnold's Chiari. Chiari will show up on a MRI if read correctly. After my Chiari diagnosis 11/2010, I had a MRI study of the spinal fluid in my head. That is when I was diagnosed a few days later with Arnold's Chiari. I had to immediately have a VP shunt put in my brain **(8 shunt surgeries from 11/10-10/11) that allows the spinal fluid to flow to my abdomen. That gave me immediate relief from the pressure pain in my head. However, it did not get rid of the pressure pain in my head when I sneezed, coughed, gagged, or laughed. In Feb. 2011 I had Chiari Decompression surgery to make the opening at the base of my brain larger. I also had to have some verterbrae removed to relieve the "brain tonsils" from being herniated through the small opening at the base of my skull which was causing the remaining pressure pain. This is a congenital condition and the doctors have no idea why I never had any problems from it until age 48. It took several years for this to be correctly diagnosed. I hope this information helps someone that may be having the same problem. Unfortunately my short and long term memory and my eyesight have been affected due to all the pressure to my brain. I still have some pain but at least now it is not constant pain. **nausea is my first sign that the shunt is now working correctly. I have had to have it repositioned, replaced due to malfuntion, and the tube in my abdomen became coiled which caused an infection that when to my brain(19 days in hospital that time). Don't wait...my long and short term memory has been affected. Find a neurologist that will listen to you and don't stop talking until you do. Hope I haven't scared you to death with my story but I want to be honest. God bless you.

correction on dates 11/2009-2/14/11


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