New to Board, Not new to Fibro/CFS
 

Hi!
I've been reading the boards for a while now and want to introduce myself. I am 28 years old, married and a mom to a wonderful 3 year old. I was officially diagnosed with Fibro in Sept 2010, but have had symptoms as far back as 1993 and have been on Fibro meds since Sept 2009. The same doctor that gave me my official Fibro diagnosis also noted that I have Chronic Fatigue Syndrome in Sept 2010. The only time that I can remember not being in pain in the last ten years was when I was pregnant with my son and for the first few months after his birth.
The last year has been very difficult and a very long journey. After my son's 2nd birthday, my health took a drastic nosedive. I had so many new symptoms that it prompted doctors to take a 2nd look at everything. I have extreme fatigue, widespread muscle pain, what feels like swelling in my hands, arms, feet and legs without any visible swelling, eye pain, dry eyes, muscle twitches and spasms, daily headaches, SI joint pain, Lumbar lordosis, both patellas maltracking, non-cardiac chest pain, tachycardia, planter faciitis, facet joint dysfunctions, brain fog, shortness of breath, swallowing difficulties, hip and leg pain, and can only walk short distances due to leg muscles tightening and not allowing me to walk farther causing me to walk with a cane for support. I've had so many tests done that came back normal. So, everything has been associated with my Fibro and CFS.

My official diagnosis are: Fibro, CFS, Thoracic Compression Fractures T2-T9 producing kyphosis with multilevel spondylosis and thoracolumbar S-shaped scoliosis, Patellofemoral Syndrome of the Right and left knee, Temporary lobe seizures with Secondary generalization, Obstructive Sleep Apnea, High Cholesterol, Osteoporosis, Vitamin D Deficiency, Vitamin B-12 Deficiency, IBS, Gastroparesis, Gastritis, and Tachycardia.

I'm currently in Physical Therapy to try and retrain my body. I still have a hard time believe that most of my disability comes from Fibro and CFS. At times it is so bad that I think that there has to be something more going on, but so far everything leads right back to the Fibro and CFS. Thanks for taking the time to read this! I'm looking forward to getting to know others with similar health obstacles :winky:
PugMomma (Rachel)

Hi I recently got my "official" dx recently too. And have a lot of issues going on too. This board isn't very active, darn it! So I've had to go looking for other sites, and found some good ones, but the mods wouldn't let me post them. I have discovered that there is more than 100 symptoms for fibro. I'm slowly learning not to feel guilty because this creaky old body won't cooperate like when I was younger. That's a biggie for me. Good luckto you!

I was officially diagnosed in March after years of symptoms. My worst symptom is fatigue for now, I also have neck/shoulder pain most of the time, and a headache every hour of every day. I tried PT, but it only made things worse. My neuro wants me to try accupressure, I still have to check into it. Meds make me so ill, so they are out of the question, which is ok with me any ways.

Welcome to the forum.

Hi this room, can be as active as we want. There hasn't been many of us that post because not many come in.

But I am around many days and look in the room. So if you post I will
respond.

I'm Donna and I have been diagnosed officially and unofficially for about
10 years. I have fibromyalgia, diabetes, migraines, and a few other things.
Sorry i am not thinking right now. I have three son's that have disabilities,
one that has complex seizures with secondary generalized. And the other
have issues with depression and bipolar.

I am a grandmother of 5 and they are the light of my world. I'm a parent
advocate for children with disabilities for the State of Indiana.

Donna:grouphug: