3 1/2 years dealing with Pseudotumor Cerebri
 

Hi, My name is Christine. I am a young mother of 3 girls and was diagnosed with Pseudo Tumor Cerebri in Jan. of 2008. Five days after I was diagnosed I had an LP shunt placement done. I was feeling better soon after the surgery and was able to go back to enjoying life. In January of this year my symptoms started to reappear. I was having headaches, dizzy spells and a lump formed on my back at the incision sight of the shunt. After months of the surgeon jerking me around as to what was going on they finally discovered in an x-ray that my shunt was broken. A piece actually came completely off the shunt and the lump on my back was CSF. So on June 8th I went in for surgery to replace the broken LP shunt and have had nothing but problems ever since. I am now dealing with low pressure headaches. Does anyone have any suggestions on how to control low pressure headaches?

Hello! Wish I could help with your specific issues, but just wanted to welcome you to the community. You certainly have a row to hoe.

Here are a couple links to our forums where you might find someone who's in the same (or similar) boat:

http://neurotalk.psychcentral.com/forum32.html

http://neurotalk.psychcentral.com/forum71.html

Someone should be along soon who can be more help than I am!

Hello and Welcome to NeuroTalk!!
 

Christine,

Happy to see you have come to be with us. We have a great number of friends here to assist you in questions you have. Just let us know if we can be of any help. Our shoulders are here for support in many ways.

Looking forward to seeing you around. My thoughts and prayers are with you.

Darlene :hug: