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-   -   In need of guidance, please. (https://www.neurotalk.org/headache/152867-guidance-please.html)

Twinsplus3 06-30-2011 07:46 PM

In need of guidance, please.
 
I had some questions for any of you. After seeing numerous doctors, and undergoing many tests, we have found out that I have syringomyelia. Since this is something so rare, I cannot find anyone that knows about it. In the mean time, I am suffering, and becoming depressed with the possibility of always feeling like this. Can you tell me if these are common symptoms: pain, numbness, tingling, muscle spasms? Also, my pain seems to be asymmetrical (right leg and left arm), is that possible? Also, since I animator to find anyone knowledgeable in this subject, can you tell me if there is supposed to be any physical limitations? What medications have you found that help? I am getting NO relief and I'm tired of nobody listening to me, I'm tired of being in pain! PLEASE HELP!!!

Lara 07-08-2011 05:43 AM

Dear Twinsplus3,
I'm so sorry you're in such pain.

My best suggestion would be to re-post on the Arnold Chiari Malformation & Syringomyelia Forum

Just click the mouse on the underliined link there. Hopefully you will find some answers.

take care,
Lara


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