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-   -   revimmune or Hi Cy treatment (https://www.neurotalk.org/myasthenia-gravis/154135-revimmune-hi-cy-treatment.html)

kristy7116 07-24-2011 02:28 PM

revimmune or Hi Cy treatment
 
I want to look into the revimmune treatment. Is John Hopkins the only hospital that does this or are their others?

kristy7116 07-24-2011 04:45 PM

I have been accepted at Northwestern for a clinical trial for a stem cell transplant, just want to make sure that i'm making the best choice.

tysondouglass 07-24-2011 08:41 PM

Quote:

Originally Posted by kristy7116 (Post 789408)
I have been accepted at Northwestern for a clinical trial for a stem cell transplant, just want to make sure that i'm making the best choice.

Kristy,

I am currently undergoing the application process and hope I really get in.. maybe I will see you there at some point!


But Johns Hopkins will doubtfully do any type of reboot on you...i tried, you have to fail EVERY medicine, imuran, cellcept, mestinon, ivig, plasmapheresis, prednisone, etc...My specialist is @ johns hopkins thats the only reason why I know. (Dr. Corse)


I think the stem cell trial is the best option

kristy7116 07-27-2011 08:51 AM

Good Luck with Northwestern, they are really great there.
I have failed prednisone, imuran, cellcept, cyclosporine A, Rituxan, IVIG, plasmapheresis and thymectomy.
The stemcell transplant and Revimmune almost seem comparable except for the stem cell harvesting, just want to make sure I've researched all of my options.
Thanks for responding.

AnnieB3 07-27-2011 05:57 PM

Kristy, I just wanted to say that I'm sorry the regular treatments aren't working. I really hope you have the best of outcomes with what you choose to do.

Annie

kristy7116 07-28-2011 10:15 PM

Thank you for the happy thoughts and words of encouragement Annie.


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