RSD / Fibro
 

I don't recall if we've been over this or not, but I've been long wondering, if anyone thinks that Fibro is a 'soft' dx for RSD?

I was first dx'd with Fibro by my chiro, but, a chiro is not able to dx RSD.

Nor, are many doctors these days, since it's a clinical diagnoses, it takes quite a bit of study under a doctor who Knows this disorder.
So, might many of these Fibro sufferers actually have RSD?
Is it a precursor to RSD?


What do ya'll think?

Thanks.


Pete
asb

Fibro I know is completely different...

I know people who have RSD who ALSO have Fibro.... for instance, they get ketamine, and it helps the RSD but not the Fibro... My doctor thinks I might have fibro also because my RSD pain is under control I still have a pain that is fibro similar and my rsd doctor cant explain it...

I wish RSD was a precursor to RSD because researchers KNOW so much more about fibro than RSD. I have asked many doctors about this, and they have all replied that ours affects our brain is different.

Also, I wish it was the same because Fibro doesnt make our limbs curl in, arms turn purple, shiney, nails brittle... etc...

I often have wondered... and find out that ALOT of people that RSD tend to get other autoimmune diseases or some other type of disease. They say that our immune system isnt reduced... but since our brain is kinda in a sense "wacked" are we more susceptible to get other things???

I do think that people get diagnosed with RSD that might have fibro and people that have fibro get diagnosed with RSD... being that there are NO tests for either of them..

But I think the biggest thing with RSD is the physical changes of our body when it is out of control. Now that I have had my ketamines, I have gone through pt, I have eliminated ALOT of the color changes, curling, by my constant treatment of ketamine infusions, exercise, textures, etc all that fun stuff.

I know people with fibro, and us with RSD, are in a HELL of alot more pain. We have weird crazy things that affect us that dont affect people with fibro. (my aunt has fibro).

*** I am in NO NO way putting anyone down in pain with fibro. Please dont get that from me, I just know that it is 2 different things, and I have researched alot, and talked to alot of people and compared symtoms, scenerios they can and cant handle, and by far RSD is worse :( Having so much time to spend in bed, this has been something that I have wanted to know for over 2 years now but just never posted on so I am greatful that you did! From the information that I have gotten from people with both... They are different... But have a few similar symptoms... but the way a person describes their pain with fibro/ to the way they describe RSD...is different as well. Similar but, RSD tends to be WAY more extreme.

I hope I made a little bit of sense....

Do you notice differnet pains with fibro and RSD? OR do you just have RSD or do you have both?

This is totally interesting to me..!

Hannah

I have heard from one of his patients that Dr. S in Philly actually thinks that RSD is a more severe form of fibro. And interestingly enough, after my infusions, joint pain that I have in my neck, feet, shoulder and hip area dissipates and then slowly builds up again until my next infusions. My hips have lately become the worst, perhaps because of all the walking I do. Ketamine makes them feel much, much better. Then after several weeks it starts all over again. Most days I walk 4-5 miles.

Maybe my joint pain is just RSD, not fibro. I have no idea. Its never been diagnosed, I no longer ask anyone about it. For fibro, aren't there supposed to be a certain number of joints that counted in order for a diagnosis to be made? i.e. - like 14 out of 20 or something similar? I know my sister who has RA with lupus overlap also has many fibro symptoms....

I also wonder if Fibro is a diagnosis for doctors when its "I dont know"....

I have read ALOT and MOST meaning probably <90% 9/10 of the people that I have talked to the onset of their fibro came from something EMOTIONAL in their life... Them not handling their emotions.... This isnt from doctors just a pattern in the people that I have talked to that have it.

Whereas RSD, comes from a physical trauma...

It would make sense for a person to get the Fibro AFTER RSD from all the emotions RSD brings you....

???
Any thoughts?