NeuroTalk Support Groups - Multifocal Motor Neuropathy

NeuroTalk Support Groups (https://www.neurotalk.org/)

- General Health Conditions & Rare Disorders (https://www.neurotalk.org/general-health-conditions-and-rare-disorders/)

- - Multifocal Motor Neuropathy (https://www.neurotalk.org/general-health-conditions-and-rare-disorders/155447-multifocal-motor-neuropathy.html)

Multifocal Motor Neuropathy

Hi,
Does anybody know anything about using Imuran in addition to IVIG as treatment for MMN/CB ? I had been treated successfully with IVIG for 14 years until last spring when I started to get adverse reaction. Now it seems it has just lost its effectiveness so my neurologist wants to add an immuno -suppressant. CellCepte was tried but side effects were too many for my liking.
Thanks.

Multifocal Motor Neuropathy

Quote:

Originally Posted by ChrisSabin (Post 796249)

I have just been dx with MMN (not for sure it is MMN but we shall see) but I know I have had problems for yrs...What symptoms do you have... My neuro says mainly is just weakness in the muscles....I am not convinced the neuro is right about the dx..Going for a third opinon at Mayo... Waiting for an approval from my insurance for IVIG.. Have you tried IVIG and how much did it help you..Nancy

I hope someone can answer you here, I am also curious what your symptoms were? I am in limbo land for diagnosis - possible CIPD they are thinking, but i have some swallowing/speech issues too, which makes me nervous