MS SYmptoms and no diagnosis
I am new to this site, am I am glad to be here. It shows that I am not alone. I have been suffering terribly from multiple symptoms for over 4 years now. I am a 46 year old woman that was extremely active, a police officer for 11 years and a mother of 2. In 2008, I became seriously ill and weak. It developed into a severe and chronic case of pneumonia. I ended up leaving law enforcement and goinig from hospital to hospital. Eventually, one doctor did a test and it came back positive for EBV. Since 2008, I have been getting worse. I have seen 3 neurologists and one has been testing my symptoms for the past 2 years. In an MRI in '09 it showed a 3mm punctate focus of T2 hyperintensity seen on the FLAIR, axial and sagittal images located in the posterior parasagittal right frontal lobe. There is also a poorly marginatedarea of T2 hyperintensity seen in the central aspect of the upper pons extending to the base of the left cerebral peduncle which measures 17 x 11 mm. I have no idea what this means and I am not sure how to search it. I asked my neurologist and he seemed to "go around the question" and gave me the impression that he doesn't want me to research. I am desperate for a diagnosis. I have been tested for MS, Myasthenia Gravis, Epilepsy, Narcolepsy and so much more. I am frustrated and don't know where to go from here. If you know what this stands for I look forward to hearing from you. Thanks.
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Welcome to the NeuroTalk Support Groups!
You mention positive EBV. I take that to mean Epstein Barr Virus? My daughter had/has that. Affected her greatly. I can't comment on the radiology report I'm sorry. Sounds as if you've been given the run-around by your treating doctors. Here's the link to the MS Forum here. They're a really great group of people. I'm sure if you repost your message over there as well, you may get more responses. NeuroTalk Multiple Sclerosis Forum |
Hello,
Could you talk more about the symptoms you've had? |
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