undiagnosed still...
 

Looking for support and camaraderie while i visit tons of docs...all the tests I've had come back negative so the docs r clueless about what's wrong with me....

Welcome to NeuroTalk Support Forums.

I hope you find some answers here to any questions you have here. Just a suggestion, but it might be good idea to post some more information and then others might be able to help you find some direction.

all the best.

im new here and need support
 

i am 37 and confined to a wheelchair for seven years...my legs were first effected then i started with nystagmus when i was 17...my arms have gotten in the game in the last year...i still haveNO DIAGNOSIS Help me stay sane Please!

Hello,
Yes, if you can tell more about about your symptoms and describe them, maybe someone can relate to a similar condition.

What kinds of Drs have you been to so far?



rachelyse -
PS - I merged your 2 new threads here on General Health Conditions & Rare Disorders into this one, replies & info will be simpler for you to keep track of all in one place until you are more familiar with the forums.

Welcome to NeuroTalk.

Have you been evaluated for low B12? Persistent low B12 leads to vision issues, and a condition called combined degeneration of the spinal cord. This leads to wheelchair life, and if untreated, death.

In the US , lab ranges are not accurate anymore and low values are often called "normal" by doctors based on them.

If you haven't had a B12 test, please get one ASAP and report the numbers back here. There have been posters here with very low B12 who were in terrible shape over the years.

This seems simple, but it does get overlooked depending on the experience of the doctor.

Here is my B12 thread:

http://neurotalk.psychcentral.com/thread85103.html

Please tell us more about yourself, as well..;)