Fear of Lying: Been here, done this!
 

It's been two years since I was last here. Just reregistered and the message says: Our records indicate that you have never posted to our site before. Not true. I was an active poster after an 8-hour blackout on a plane that left me with a diagnosis of epilepsy. Looked for answers here and incredibly wonderful people responded and comforted.

Two years have passed, this board has changed, I've been fine, and I still don't believe I had epilepsy. However, in the past several months I've had a few weird events that make me wonder. One morning this past December I woke up to find my pajamas and the bed soaking wet; I apparently peed vigorously in my sleep, and had no memory of it. This was a first time event for me. Then four weeks ago I seemed to have gone wandering in my sleep (I have no history of sleepwalking) because I awoke with excruciating pain and difficulty breathing. Called my doctor, was sent to the emergency room, and X-rays revealed a broken rib. Nothing in my apt was disturbed, nothing overturned or out of place to indicate a fall, and I had no memory of any nocturnal activity, accident or resulting pain.

So here I go again. New neurologist, new round of tests. MRI on Monday, sleep-deprived EEG to follow. Been there, done that -- and expect no conclusive results from any tests. What next?

Hi Heather and welcome to NeuroTalk. You might be referring to Braintalk which is a totally different board. Some of the same people post at both boards.

I hope that you find the answers you need with your new doctors and tests. You will find a great group of people here to offer support!

Julie

Hi Heather and welcome!

I only had one seizure a year (at most) for a long time up until I was 28, then they changed and came more frequently. I do think in your case they should do a VEEG or a longer EEG on you to observe for Nocturnal Seizures and to see if you're even making it into REM sleep.

For now, I'd suggest keeping things away from your bed (Nightstands or anything you can fall on) and check for a wedge pillow to use against your back (so you sleep on your side).

Be safe and please, please keep us updated!