tacrolimus
 

Has anyone here gone on tacrolimus?
Starting on Monday

I did. It made my already bad symptoms much worse, and quickly, too. I only lasted a month on it, but it was a looooooooong month. LOL

That being said, I know of 2 people who personally had terrific results with it. The best thing about Prograf is you will know quickly, one way or another, if it will work for you.

Just remember--no using ibuprofen and stay away from grapefruit juice as well. There may be a few other precautions you need to be aware of before starting.

Good luck!

4eyes- does it really affect u that fast? my neuro said maybe 2 months for results. would be awesome if it worked. but, sorry it didn't work for you..


I'm going to Chicago tomorro for the consult w doctor Burt- stem
cell transplant..

hope all goes well.

Yes, I did go "downhill" that fast. Whether it was something that was happening anyway, or the prograf, I am not 100% sure. I just know I was very sick within about 10 days and was off the prograf and back on cellcept by the end of that month and was back to my "regular bad" a few weeks later.

Good luck in Chicago!

Hi Tysondouglas!
 

JUST WANTED TO DROP BY AND SAY "GOOD LUCK" AND "I WILL BE PRAYING FOR YOU!"...........

PLEASE LET US KNOW HOW IT GOES!

LOVE,
ERIN:hug:

4eyes....hm thats crazy...why dont more people try it if it works/doesnt work so quickly? It seems to be more of a last resort drug...I have really never heard of it before my neuro suggesting it a few days ago.


Erin- thanks alot, i hope all goooes smoothly haha im too anxious to sleep!

This drug carries higher risks of serious side effects than Cellcept does: Including cancer. So doctors are going to save it for last if other less harmful drugs could potentially work instead.

http://en.wikipedia.org/wiki/Tacrolimus

Mrs D is right. It's a strong drug. I like Cellcept much better!:)

Yep, my neuro advised me of all the side affects. As of now I am on Tacro, prednisone, and Imuran. Along with IVIG- will be until tacro starts working or we go along with the stem cell. Can you say immunosupresssed?!