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samyjo 10-02-2011 05:52 AM

Hello
 
Hi ,

I was diagnosed with AIH 3 months ago. It is in the early stages and I am only on 400 IU Vitamin E right now.

I have been reading about it and it all sounds very scary to me. When my gastro told me i went numb and really didn't hear what he was saying.

He is checking my liver enzymes every 3 months and he says if they get much higher he will do a liver biopsy.

Scared, Samyjo

Darlene 10-03-2011 01:11 AM

Nice to meet you!!
 

Hello and welcome to NeuroTalk. Happy to see you have come to be with us. Just let us know if we can be of any help.

There are great number and caring fellow members here, just let us know how we can assist you. Our shoulders are here for support in many ways.

Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Darlene

eva5667faliure 10-03-2011 08:44 AM

hello
stay close don't go away
lots and lots of support here
i do not no what your condition is
i can tell you i relate
being scared alone is enough
i pray all goes well
welcome

Rrae 10-03-2011 07:58 PM

Hello Samyjo!
 
Welcome to NT!
I'm sorry for the reason which brings you here, however.
But take comfort in knowing that we all care and understand your fears.

I hope that you have a good medical team and that you'll begin to get answers soon.
Make yourself at home here, you've got FRIENDS!

Caring
Rae
:grouphug:

BlueCarGal 10-07-2011 06:56 PM

Of course you're scared.
 
Quote:

Originally Posted by samyjo (Post 811306)
Hi ,

I was diagnosed with AIH 3 months ago. It is in the early stages and I am only on 400 IU Vitamin E right now.

I have been reading about it and it all sounds very scary to me. When my gastro told me i went numb and really didn't hear what he was saying.

He is checking my liver enzymes every 3 months and he says if they get much higher he will do a liver biopsy.

Scared, Samyjo

It does seem that you're being treated very conservatively, but apparently they feel that's how early the stage is when they've caught yours. In any disease, early diagnosis is always a huge thing in your favor.

When I was 15 I had hepatitis B & was terrified. I can sympathize, because auto-immune hepatitis is potentially so much worse.

Do you think you have a good doctor? Do you have friends or/& family with you to support you, or are you alone in this? I'm glad you found us, because now at least--scared as you are--at least you don't have to be scared alone.

Samyjo, we can be part of a support system for you. NT is full of good, generous people. Stay in touch, & let us know how you are.


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