Post Concussion Syndrome - multiple TBIs - what works?
 

13 year old daughter received multiple concussions in soccer tournament 7 months ago. Only 34 % short term memory, can attend school only 4 hours. Chronic headached/migraine intractable level 5 out of 10 daily, does not respond to prescription treatment. Did DHe IV therapy, magnesium sulfate, and botox 5 day hospital stay month number 6, not very successful. Also has P.O.T. syndrome as a result of T.B.I. Also lost or damaged sense of smell and taste.

Tried Biofeedback. Tried chiropractor. Did Physical therapy for verstibular therapy and then neck therapy.

On elavil 6 months, beta blocker nadalol (to treat migraine and POTS), zanaflex. She has been a walking pharmacy as described by one neurologist. On neurolgist # 3, happy with this one. Waiting list for intensive cardiologist run POTS program here. In Dallas Texas, where can we go?

Looking into Cranial Sacral Therapy, accupuncture, neurotherapy. Also looking at Mayo Clinic, And Mary Free Bed Rehabilitation hospital. Any insight suggestions?

Thanks, new to site.

Hello Brideyanne!
 

Welcome to NT!
This is a wonderful place for support and understanding. I am sorry about what you and your daughter are going through. There are many here who understand and we have several great forums here that you might benefit from.
Here's the Traumatic Brain Injury:

http://neurotalk.psychcentral.com/fo...sprune=-1&f=92

Just holler if you need help finding your way around.
It's great to have you!

Caring,
Rae
:hug:

Be careful how many different meds your daughter goes on as I have the same thing as her. Multiple concussions do to car accident as well as a fall I had. I suffer from headaches I've had now for 23yrs. I was diagnosed with POTS in 06 at the cleveland clinic. My POTS is do in part from the accident in 87 as well as pain doctors prescribing to many preventive meds and abortives for the headaches. The meds were toxic to my nervous system. Almost any drug I take my body over reacts to the drug and it gives me really bad side effects and they make the POTS worse. I basically only take a pill for my BP and 1 for my HRate. I also take elavil for sleep and Vicodin for the headache. So far those drugs have helped and don't affect my POTS negatively. If you want to talk you can always email me I have a lot of self awareness with both these conditions your daughter and I have. It's a lot of trial and error.