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-   -   occipital neuralgia (https://www.neurotalk.org/new-member-introductions/159143-occipital-neuralgia.html)

4blackbears 10-14-2011 07:57 PM

occipital neuralgia
 
Hello. I am new. I have a question. Has anyone have the occipital neuralgia sugery? I have occipital neuralgia and am on medication. they don't seem to be working, I have had the botox done.It don't help me. I am looking into cutting the nerve. has any one have that done and what is the side effects?
please help


thanks

Rrae 10-14-2011 09:27 PM

Welcome 4blackbears!
 
It's great to have you here at NT! You'll be amazed at how much support and care you'll find here.

You ask a very good question! We have a forum here specific to occipital neuralgia. Here is the link to get you there:

http://neurotalk.psychcentral.com/fo...ysprune=&f=105

It would be a great idea to post your question over there and you'll get some good input. There's lots to read over there. Take note at the top of the page, there is a little section called 'The Stickey's'. Good stuff.

I hope you start getting answers soon!

Caring,
Rae
:hug:

Darlene 10-15-2011 12:45 AM



4blackbears,

Hello and welcome to NeuroTalk. Happy to see you have come to be with us. Just let us know if we can be of any help.

There are great number and caring fellow members here, just let us know how we can assist you. Our shoulders are here for support in many ways. You see we are supportive and relaxed place to be. Looks like Rae has gotten you started.

Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Darlene :hug:

MelodyL 10-16-2011 10:27 PM

Quote:

Originally Posted by 4blackbears (Post 814954)
Hello. I am new. I have a question. Has anyone have the occipital neuralgia sugery? I have occipital neuralgia and am on medication. they don't seem to be working, I have had the botox done.It don't help me. I am looking into cutting the nerve. has any one have that done and what is the side effects?
please help


thanks

Hi. glad you found us. Just wanted to stop by and say "welcome"

Have a good day and keep posting.

Melody

marriedtopain 02-09-2012 09:52 PM

talking from experience!
 
Quote:

Originally Posted by 4blackbears (Post 814954)
Hello. I am new. I have a question. Has anyone have the occipital neuralgia sugery? I have occipital neuralgia and am on medication. they don't seem to be working, I have had the botox done.It don't help me. I am looking into cutting the nerve. has any one have that done and what is the side effects?
please help


thanks

My husband has had o.c. for fourteen years .He has had the nerve stripped,severed and now he has a peripheral nerve stimulator,which doesn't do much good either. By severing the nerve, more scar tissue will form which in turn will squeeze the nerve even more creating more pain.They have stopped doing this procedure in Canada as it is proven it only increases the pain. The patient develops "phantom pain" which is like losing your arm but the pain still exists. The pain still tries to travel along the nerve but when it reaches the severed part it just hits the end of the nerve trying to complete it's path. The pain is worse than it ever was before.


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