need a doc
 

i have rsd cprs 2 in my legs and right bottom i can not sit down have not for seven yeras because i got a injection in my buttocks instead of the hip like suppose to and the medica she used she did not dilute it so it also fried my sciatic nerve walked in the insta care could not walk out been on crutches and have not sat or put pressure on that side dont lay neither i lean! anyway it has spread to my left leg and starting go in arms and hands over 7 yeras im tired run down barly hanging on hard on kids but my doc that specali in this has retired he was one of the main docs in ut county that new alot about it! so if anyone knows of a doc in utah county let me know cant live with this pain i get about 2 hours of sleep if lucky in 2 weeks even with pain meds and sleeping meds the pain is so severe no insurance but have been declared legally disabled cant get on medicare yet so redoing medicaid again was on it but have to redo so have not had insurance for months again that has been alot of my problems trying get help wanted to try the stimulator now there saying only medicare pays for it or its alot of money and i prob wont bennifit from it because of how many years i have had it and how severve it is did try the calmare treatment last week but went to a doc who brought the machine in for me to try but the sales people ran the machine because the doc did not no how to yet so i just say was not a good experience it hurt they could not find the right spot made me feel bad because they could not go higher with the voltage so i said fine go higher wrong thing to do! so i am going to try it at the u of u where they say a doc there knows how to run the machine i never got relief at all from the first time last week but could been because they did not do it right! also was told by my doc before he retired and the doc who brought it in his office in provo ut for me to try said dont know if will work i am a hard case from all the damage and how long it has been and when it first happened little over 7 years ago had no insurance and where i got the injection from the nurse who did it in wrong spot and was not certified to do them i did not no at the time and did not no at the time the doc had been introuble alot also and had hurt other patients well of course they did not care to help me told me he did not have a miracle pill and to leave so low income no insurance i was limited to what i could do! now i feel like i am back to square one and trying to find another good doctor who specaili in this the one doc in provo who brought the machine in for me to try is a pain doc its a nexus and he has seen me for free couple times but said i would not benifit from the doctors there because they try more nerve blocks different things like that and it would not help me he is calling around to try and find one also but if anyone does no of a doc in utah county let me know i would rather go to one that knows more about it then one who dont

Hon, just thought I'd suggest if you title the thread "need a doc in Utah" you might get better results.

kimberely,

Try looking on the RSDSA site or American Pain Foundation. They both have a list of Dr.s. I also believe American RSD.

On this web-site (thread 148368-2) a doctor in Salt Lake City is listed: Andrew Tallbutt Life Tree Pain Clinic, 801/261-4988. I don't know how close he is or even if he may be the doc who retired.

kimberlyluv, you could also research "spinal pumps". These devices are implanted similar to stimulators but deliver pain killers directly into the spine. I've read of several RSD success stories using this device but not long term stories. The narcotic is delivered directly to the nervous system by bypassing injections and stomach. My understanding is narcotic intake is decreased with this device. However there certainly is danger that can occur and has.

I pray you find that doctor ASAP!

jim&suzy

My neurologist is talking about one but I'm trying to stay away from anyone messing with my spine....(I'm a big chicken, lol)

Jim, my wife has rsd now for 10 years. She told me she will not consider the pump until she is older, maybe late 50s or 60s. Like you, she does not want any intrusive procedures in which there is plenty of logic behind this line of thinking.

Jim,
As far as my degenerative cerebral atrophy (my wife calls it the brain shrinking thing) goes, the only way it could be possibly be treated is by drilling into my head and the RSD is trying a spine pump or block is said nope to both. The brain shrinking thing is getting worse but it's still nope...

ABPM Seach Engine
 

One thing I (and do often) can suggest is the directory of certified pain specialists, maintained by the American Board of Pain Medicine. With the exception of some notable specialist in the field who were "grandfathered in," all applicant must first complete a one year fellowship in pain medicine - after their residencies - and then sit for an 8 hour written exam.

Here's its search engine http://www.association-office.com/ab...dir/search.cfm Please note that each doctor is listed with a specialty or origin, i.e. the pre-fellowship residency. As a rule, for RSD/CRPS, I would avoid people coming from a physical medicine background, and lean instead towards neurology, internal medicine, or the like, recognizing that the bulk of practitioners will have a background in anesthesiology, which is okay, but may not be great when it comes to the cutting edge stuff.

That said, searching under Utah reveals a pain specialist trained in anesthesiology who is regarded by some as one of the better CRPS docs in the country:

Lynn Webster, MD
Life Tree Pain Clinic
3838 S 700 E Ste 202
Salt Lake City, UT 84106

801-261-3341 (phone)
801-892-5140 (fax)

I hope this is useful.

Mike

Lifetree Pain Clinic is now Omega Interventional Pain - they changed names. Dr Webster isn't a practicing dr, he only does research in a research facility below the clinic, but all the drs have worked with him and know rsd well. I'm from Oregon but travel there for my ketamine infusions. I see Dr Pulley and he is awesome. It would be a bit of a drive from Provo, but well worth it from the sound of your situation. They are the best drs I've seen so far.