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-   -   23andMe: Milestones in the Fight Against Parkinson’s Disease (https://www.neurotalk.org/parkinson-s-disease/159795-23andme-milestones-fight-parkinson-disease.html)

Peony 10-25-2011 11:07 PM

23andMe: Milestones in the Fight Against Parkinson’s Disease
 
I'm a member of 23andMe and I hope many of you are, too, because I think it could really help speed up the Parkinson's research, which has been frustratingly slow. They just posted some interesting news today about their Parkinson's research project. You can see it on their blog, "Milestones in the Fight Against Parkinson’s Disease" at this link: http://spittoon.23andme.com/2011/10/...nsons-disease/. And by the way, the second video shown in the blog is of me (Paula)! I was interviewed last month for for the Health 2.0 Conference in San Francisco. Let me know what you think.

zimmer127 10-28-2011 07:05 AM

Paula, congratulations on your video! I had already seen it and am starting to go around to PD support groups in my area to talk up 23andme. I agree with you - this is a wonderful way to speed up research. I thought that the video by Anne Wojcicki is fabulous for explaining what they are doing. Also recommended is an article in Wired Magazine, by the same guy who is interviewing Anne in that video. Keep the faith!

Peony 11-01-2011 11:30 AM

Quote:

Originally Posted by zimmer127 (Post 819403)
Paula, congratulations on your video! I had already seen it and am starting to go around to PD support groups in my area to talk up 23andme. I agree with you - this is a wonderful way to speed up research. I thought that the video by Anne Wojcicki is fabulous for explaining what they are doing. Also recommended is an article in Wired Magazine, by the same guy who is interviewing Anne in that video. Keep the faith!

Thank you very much, Zimmer127. There were several Views of my post, but yours was the only response, and it means a lot to me. I think it would be great if all with Parkinson's enrolled in 23andMe's research project. We could all benefit.

olsen 11-01-2011 01:58 PM

23andme
 
My husband is a long time supporter of 23andme research. I recently had my profile done. Think the outsider billionaires conducting their own research is awesome.
Recently contacted a geneologist to discuss one of my husband's mutations reported from 23andme, and this physician/geneologist strongly advised my husband have a "real" DNA testing done through the university laboratory before consulting with us! We were informed that they were sending in samples on their own to test the validity of results from 23andme. Perhaps this guy was motivated by true concern. He was a kind gentle man. So i am hoping that was his motivation and not turf war mentality. madelyn

paula_w 11-01-2011 04:59 PM

we are the choir
 
in you are preaching to the choir. i'm paula too, and also made a video back a couple of years and after consulting this forum 23and me went global. the kits cost 25 dollars then and those outside the USA were having to pay for postage. when the company learned that from us and realized we do our homework and are global, they changed the code to global postage paid.

i ,too made a video that is now outdated because the kits are now free. see SPIT video at

http://parkinsonscreativecollective.org/video/pvid.html

and bandido bob at
http://parkinsonscreativecollective.org/video/bobr.html

glad to have others like you in the cause .they still need thousands more and it's a good thing. thank you for sharing.

Peony 11-04-2011 04:15 PM

Quote:

Originally Posted by paula_w (Post 820878)
in you are preaching to the choir. i'm paula too, and also made a video back a couple of years and after consulting this forum 23and me went global. the kits cost 25 dollars then and those outside the USA were having to pay for postage. when the company learned that from us and realized we do our homework and are global, they changed the code to global postage paid.

i ,too made a video that is now outdated because the kits are now free. see SPIT video at

http://parkinsonscreativecollective.org/video/pvid.html

and bandido bob at
http://parkinsonscreativecollective.org/video/bobr.html

glad to have others like you in the cause .they still need thousands more and it's a good thing. thank you for sharing.

Hi, Paula_W. Thanks for your comments. I've been a member of this forum since 2009 and I do remember seeing your video. I had hoped my post might be useful to some and further promote 23andMe's Parkinson's research project, which I think is very important, and certainly didn't intend to come across as "preaching to the choir." I realize, of course, that some "old timers" here may be familiar with 23andMe, but I assume the forum has new members all the time who may not know yet.

I didn't make the video of my interview; it was done for 23andMe by a professional company for the Health 2.0 Conference held in San Francisco in September.

paula_w 11-04-2011 06:51 PM

video is great
 
Quote:

Originally Posted by Peony (Post 821843)
Hi, Paula_W. Thanks for your comments. I've been a member of this forum since 2009 and I do remember seeing your video. I had hoped my post might be useful to some and further promote 23andMe's Parkinson's research project, which I think is very important, and certainly didn't intend to come across as "preaching to the choir." I realize, of course, that some "old timers" here may be familiar with 23andMe, but I assume the forum has new members all the time who may not know yet.

I didn't make the video of my interview; it was done for 23andMe by a professional company for the Health 2.0 Conference held in San Francisco in September.

poor choice of words i guess but none of them said your video wouldn't be useful or helpful to people. The video is a wonderful addition to a cause that is very important. I merely shared our experience prior to this.


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