Alan's podiatrist gave him a compound cream
 

I'm not sure if it's a cream or an ointment. I made a video so I could show you and I list the ingredients.

Here is what it is

http://www.youtube.com/watch?v=lLrmnZmW6RY

He's trying it out tonight. He's never had a compound anything before so we shall see.

Will update.

Melody

Please let me know how it works. I have a neuro appt next week.
Thanks!

I don't understand the clonidine in it. This is typically only used in RSD patients.

Does Alan take blood pressure pills? The clonidine may be absorbed enough to affect blood pressure in some patients.

Most of the formulas I saw didn't have this many ingredients.
Not all patients need all the ones listed on that label.

For pain, it would be ketamine, an NSAID, maybe gabapentin, and maybe a TCA. Baclofen is only for spasms...does Alan have spasms?

HI Hopeful and Mrs D.

Mrs. D, I read your post to Alan. He didn't understand the word spasm. I showed him when the toes curl and he said "Oh I always have that". So he has spasms obviously. Then I told him about the blood pressure connection. He takes metoprolol.

I asked him if this compound has helped him and he said "Yup, I do notice some improvement'

He is now going to run this by Dr. Fred the next time he sees him. But so far, no negative side effects.

Will continue to update.

Melody

My podiatrist gave my husband a compound cream that has similar ingredients. He has been using it and he says its helping his feet. He is waiting for the order to come which the doctor's office took care of submitting. I'm dying to see how this works regarding the prescription.

I'm curious. If this works for my husband and the podiatrist writes us a prescription, is this considered a generic product. We can really use the break if this is covered under generic. I have to go and ask the pharmacy tomorrow. I once asked them if they were a compound pharmacy and they said yes, so that's good. We've been going to this pharmacy for 20 years.

Melody

Billing compounded products can be difficult. Some computer systems do simple ones. But it is my experience that most compounding pharmacies may make you pay cash up front, and then
give you receipts, and then you submit to your insurance program for reimbursment. This is because the software often does not have programming for detailing the list of ingredients.
Some insurances don't want to pay for ketamine for example since transdermal application is not FDA approved. Right now compounding pharmacies are under investigation for making products with no data to support safety and efficacy. So if your insurance requires this data, you may have to pay out of pocket.
The only way to know for sure is to contact them about eligibility.

This is what I'm fearful of but the doctor said our insurance would cover it, so I'm trying to have faith in him and feel like he knows what he's talking about, but when insurance is involved, it seems any excuse they can find, they'll use to not cover something.

The compounding pharmacies around me all make the patients pay cash up front.

Then you submit the bill yourself manually to get reimbursed.
But I just saw a post on RSD where our member said his insurance just started declining Ketamine.

All the many insurances have different rules. And compounds may not go thru on computer billing at point of sale like other RX things. Best to find out before you get there. Compounded creams are very expensive.

I heard from the pharmacy which is filling my DH's order for the compound cream. They said we have a $15 copay which is standard for our insurance and they are shipping the cream with a bill enclosed for the copay only so this sounds encouraging. They are out of state for us and they are shipping UPS. I'm so glad that the Doctor did know what he was talking about. This is good news for us and that copay is a generic copay, FWIW.