strange info from SSDI phone call
 

I was approved for SSDI more than a year ago. I have read on this site somewhere that people can call and see why they were approved. I finally got around to doing that. My main problem is Reflex Sympathetic Dystrophy (otherwise known as Complex Regional Pain Syndrome) but also have Peripheral Neuropathy, Fibromyalgia, was diagnosed as having depression etc etc etc. Quite a few things.

I know you are supposed to keep seeing your doctors. I see a family doc as well as 7 specialists. Money is tight now more than ever, and I could stop seeing 2 or 3 of the doctors. No one can do anything to help me anymore anyway. So I thought I would see "why" I was approved, then I could cut back on docs that were not involved in that particular problem.

When I called, they looked it up and said I was approved for Multiple Sclerosis. I have been tested for that recently (after approval) and do not have it. I don't think I was ever tested for it in the past. I got copies and read them of all my doctor records for the past 10 years. No mention of MS.

Hmmmmm

The woman at the office said that they "probably" put what I have under MS because they do not have every disease in their listings and sometimes put you under the next closest thing. She said "isn't what you have sort of muscular?" I said no, it's in the nervous system.

Hmmm.

What I wonder about is when it comes time for the Continuing Disability Review - if they do not see MS among the things I am being treated for --- then what?

I'd like to get more info from SSDI, but frankly, I am afraid to follow up and bring attention to this.

It seems wrong to have been approved for something I don't have.

Has this happened to anyone else? Any comments on this?

Thanks!

what you were approved for is in the letter you get from social security when you are approved, at least this was the case with an alj decision.

Was this a call to the national 800#?

I know it seems far fetched that it was read incorrectly, but my experience makes me think it's possible.

In the useful forums sticky, the last post is a link about CDRs that is really helpful IMO. (sorry, I can't link from my phone right now)

Most people receive the short form that is computer scanned. If you don't use the disorder you were approved for, it can get kicked to be reviewed by a person and you could get the long form, which is supposed to be treated like your initial application.

MS is listed under "neurological" on the Adult List of Impairments. See if your symptoms "fit" MS better than the others listed.

http://www.socialsecurity.gov/disabi...ical-Adult.htm

when you get the cdr it will have the codes on it for what you were approved.

these are the codes

https://secure.ssa.gov/apps10/poms.n...5!opendocument


here is where you find it on cdr

Scanline 1 –
Field 1 – Social Security Number under which the mailer is being controlled

Field 2 – Beneficiary Identification Code (BIC) (Title II), or

Individual Recipient Identification code (ID) (Title XVI)

Field 3 – Year of beneficiary's birth

Field 4 – Year of most recent prior CDR

Field 5 – Primary and Secondary Diagnosis Codes


Scanline 2 –
Field 1 – Medical Diary Reason/Type

Field 2 – Concurrent Entitlement information

Field 3 – Profile Type (High, Medium, or Low)

Field 4 – Profiling SCORE (9999 is highest)

Field 5 – Report Period covered by the mailer

Field 6 – Scanning Form Identification Code (SFIC) (describes if it is a first or second request mailer, whether it is Title II, concurrent, or Title XVI-only, and whether the beneficiary prefers a non-English language notice).

Field 7 – Servicing Processing Center

Field 8 – Servicing State Agency/DDS code

Field 9 – Servicing Field Office (FO) Code


Scanline 3 –
Field 1 – Servicing FO City Name

Field 2 – Servicing FO State

Field 3 – Servicing FO ZIP CODE

Echos, I was approved at the first level, I did not have to go to ALJ. I went back and looked at the letters I received. None of them say what I was approved for.

Lit Love, at first I called the national number on my award letter. They said I needed to call my local number, since each state determines if and why you are approved. So I called my local office.

Jana, I think you are on to something. My main issue is RSD. That is neurological. There is no listing for RSD. I read all through the neurological Impairments and MS does have some similar symptoms.

Echos, thanks for the CDR detailed info. That was helpful.

So, sounds like I want to keep up with the neuro doctor for sure. And the pain management doc.

Perhaps I can drop the psychologist, rheumatologist, and podiatrist.

Thanks!

I think I started a thread last yr about something like this. I called SSA and they said I was disabled with A and B or just A or just B. In my approval letter it also mentioned another impairment(non-disabling) which wasn't listed as A or B. This impairment is kicking into full gear plus I am just starting another impairment which progressively gets worse.
A PCP can't officially declare someone disabled since they aren't a specialist. They recommended my specialists. They are sorta a watchdog for your other aliments. I don't know if SSA considers a PCP important as far as your impairments are concerned.
I may never get reviewed because of my age ,but I guess there is always that chance.

Another important reason to take a copy of your CDR before you mail it back...