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-   -   Newbie looking for info (https://www.neurotalk.org/trigeminal-neuralgia/160191-newbie-looking-info.html)

fewleh 11-02-2011 11:43 AM

Newbie looking for info
 
Hi - I'm on a steep learning curve. My mum has been diagnosed with TN, and I have been reading all I can on the subject. Communities like this are a lifeline to share experiences with similar people, and helps me realise that whilst it's quite rare, there's still alot of people affected.. and hopefully we can draw strength together.

I'm going to be reading as much as I can on the foums here, but if there's anything I really should read, please send me a link, would welcome as much info as possible.

EE03 11-02-2011 12:28 PM

Quote:

Originally Posted by fewleh (Post 821136)
Hi - I'm on a steep learning curve. My mum has been diagnosed with TN, and I have been reading all I can on the subject. Communities like this are a lifeline to share experiences with similar people, and helps me realise that whilst it's quite rare, there's still alot of people affected.. and hopefully we can draw strength together.

I'm going to be reading as much as I can on the foums here, but if there's anything I really should read, please send me a link, would welcome as much info as possible.

Hi Fewleh, I commend you for coming here and trying to learn all you can for your mums sake. There is a book titled "Striking Back" which is an excellent resource for anyone with this condition. It is sold by the Trigeminal Neuralgia Association(TNA) and you could also check your library for availability as well. Here is a link to their website however the site is undergoing maintenance and I can't link directly to the book: http://www.endthepain.org/ I think someone mentioned that its available on Amazon to, but I'm not positive about that.There is a lot of good, reliable info on their site as well and makes for good reading. There are sticky threads at the top of the forum that also hold a lot of good info. Theres alot of info posted throughout the forum so allow yourself some time to read through the forums. Take care

fewleh 12-13-2011 10:47 AM

Quote:

Originally Posted by EE03 (Post 821150)
Hi Fewleh, I commend you for coming here and trying to learn all you can for your mums sake. There is a book titled "Striking Back" which is an excellent resource for anyone with this condition. It is sold by the Trigeminal Neuralgia Association(TNA) and you could also check your library for availability as well. Here is a link to their website however the site is undergoing maintenance and I can't link directly to the book: I think someone mentioned that its available on Amazon to, but I'm not positive about that.There is a lot of good, reliable info on their site as well and makes for good reading. There are sticky threads at the top of the forum that also hold a lot of good info. Theres alot of info posted throughout the forum so allow yourself some time to read through the forums. Take care

Thanks for your kind words. I've been exploring the stickies at the top of the forum, and some good info there. We have a copy of striking back.. still trying to find time to read it all, but it's a good little bible of info!


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