One Year Reboot Update
 

Hey everyone,

One year ago today I entered the hospital for an immune system reboot aka high dose cytoxan, HiCy or Revimmune. After 4 days of high dose chemo, and about 6 weeks of intense and uncomfortable recovery time, all of my symptoms of MG gradually faded away, and thus far have not returned.

I still use my old meds, but am weaning off of them slowly. I have resumed my life. I can work, go to the gym, be a mom...anything and everything. My hair has regrown, I've gained the weight I so badly needed and most of the time I don't even think about MG anymore.

I hope it lasts! FOREVER!:cool:

I will continue to update ever so often if anyone is still interested. I will also let you know if/when the symptoms return. In summary, I feel a reboot is something that should be considered for those with refractory and dangerous MG. My results are beyond my wildest dreams!

Hang in there, everyone, and never stop looking for answers!

Thanks so much for the update, and yes, please do give us more updates periodically! It's so wonderful to hear a success story. Many congratulations!

Abby

I'm so happy for you. I pray it sticks!!!
Mike

That's Wonderful!!!!!! I'm so very happy for you! I pray that you will continue to do well and that it lasts a lifetime!

Thanks for posting your update. It's always great to hear good news!


Shari

Fantastic! Thanks so much for the update ... and please let us know how things are going from time to time! Others here are trying to get accepted into studies to undergo this procedure.

I'm so glad things are going so well now after all you have endured. I hope it continues for forever!!

4 eyes
 

What WONDERFUL news!!!!!!!!!!!!!!!!!! I am so happy for you!!!!!!:hug:

Now I am going to ask my dr about the same thing........

You are an inspiration!!!!

love,
Erin:hug:

Wow! So happy for you!!!! You give us hope. :)