How did you learn about TOS?
 

Through a general search on line about hands (white hand),arm/shoulder pain I came across this site. Long before I was even dx.
MY first EVER encounter of TOS!!!!!!!!!!!!


www.tos-syndrome.com

How did you find out about TOS?????? Just curious.:winky:

My Neurosurgeon, he sent me to a vascular surgeon for testing after having my 3 level ACDF, I continued to have pain and radiculopathy in both arms/hands along with severe headaches starting in the lower base of my neck. I also googled the same web site, so I would know a little about TOS before seeing the vascular surgeon, once I started reading I had all the symptoms and within in 2 months was dx, great website with lots of info.
Thanks Bunz

I had surgery for TOS 20 years ago, but I had no knowledge of what it was at all. It was probably about 8 or 10 years ago that I started finding information on the Internet about it and talking to people on forums. There really wasn't that much information online back then. In the last several years I've noticed a lot more.

I heard about it from my doctor who suspected I had it. He didn't call it TOS but described TOS and said that people sometimes need their rib removed. He sent me for an MRI and an EMG/NCV. Three weeks later - confirmation came with a positive EMG/NCV. This was 8 years ago.

Like Coop42 said, the information is becoming more readily available. And more and more doctors seem to accept it or at least acknowledge the existence of TOS.