ocular mg
 

i have ocular mg and have tried prenisone and cellcept and mestinon. so far i have had no resolve of the double vision and droopy lids. I am beginning to think that nothing will help ... anyone have ideas???

I have same problems. The Mestinon helps my droopy eye lid but the double vision was a toughie. I was on Imuran for a year along with Mestinon and IVIG treatments. My double vision clearer up on my second series of IVIG and has stayed pretty good. My Dr took me off IVIG to see if the Imuran was doing any good. Well we decided it wasn't, so now we are switching to Cellcept and Prednisone.
Mike

Hang in there..
 

Hi
When I was put on the combo your are on, it took quite some time to get the best results. How long have you been treated with these drugs?
It took at least a couple of months to get some improvement, and it totally got rid of the double vision around 6-8 months into the treatment.
All the advice I can give it to hang in there:winky:

good luck

randy

I had improvement of my vision and the droopy eyelids after 5 or 6 months of treatment with Mestinon. I also had to get the perfect dosage figured out, it was after a decrease in the dosage that the double vision went away (or at least the worst of it). Too much Mestinon for me causes double vision.

Maybe you need more time on the treatment, or talk with your doctor about adjustments to the dosages.

What was too much?

M

my husband had not seen any improvement with his droopy eyelids untill they increased his prednisone he started on 60 mg prednisone every day for 2 weeks,then every other day for 2 weeks then started decreasing dosage...it took about 2 weeks to see improvement then totally symptom free from about 3 weeks on he also takes cellcept but has not had to take any mestinon for months. he is now at 25 mg prednisone every other day and on the way down...the increased prednisone is what worked...

I was initially told to take two 60 mg tablets of Mestinon every day, and that was way too much, I ended up with overdose symptoms. I went down to one pill a day and it was too much for the first four hours and then I crashed at the end of the day (with double vision the entire time). What made the double vision go away was splitting the pills in half and taking 1 to 1 1/2 pills a day, but only 1/2 pill at a time.

I am extremely sensitive to medication, I might be an exception in that low doses work for me. I have since then started taking 1/4 pill at a time and it works even better than the 1/2 pill.

The dosage is different for everybody. I also have taken no other medication for my MG besides the Mestinon.