adult onset leukodystrophy
 

Anybody out there with a leukodystrophy??

Michael178, I dont know anything about you situation, but I did pull it up under "MedlinePlus search Help" they had info. on it. Also a clinical stuy going on at the Institute of Health. You may want to look them up. My doctor says their very good, He is wanting to send me there for my problems.I wish you the best and God Blee You,Tammy72

I applied at NIH, and they got back to me, Cannot provide further assistance. But they did confirm Cadasil disease.. or a variant of it. My family and I test negatively for Cadasil. But this is the 3rd such opinion, all from excellent sources so we accept the verdict.

Me Too
 

I have it and am new to this. Was diagnosed in September after years of strange symptoms and no answers form former doctors.