Small Fiber Eating Me Alive
 

Small Fiber neuropathy in hands feet and legs is about to do me in, At times I feel like I am being eaten alive by this god forsaken unknown disease, dry mouth, dry eyes, dry cracked skin on hands and fingers, dry exzcema on ankles toes and feet, elavil 75 mg daily vitiam e 200 daily hydrochode 7.5/250 4 times daily, xanax and zolpidem to sleep. there are some days better than others but the bad out weigh the good, 2 weeks at MAYO test after test after test' no smoking gun, slight ra factor slight crp, sent home to suffer with no clear diagnosis, but was told I should feel relieved because there were many others just like me. have been able to keep working for the last 4 years but am losing ground and will eventuly give in and try disability.
Can anyone else relate amd maybe offer guidance, I FEEL LOST I have been to so many doctors, I tired and giving up, any help would be appreciated.
Lost Hope In Kentucky
Thanks Jeff

slight crp? not sure what that means...

Is that crps = RSD?

If it is CRPS/RSD we have an very active forum-
http://neurotalk.psychcentral.com/forum21.html

Or have you had extensive tests for Lyme?

Dear Jeff
 

Welcome to neuro talk. I am just a member with neuro issues in my neck. I read your post. I am sorry you are going through so much. I don't think what mayo clinic said to you was particullarly nice. Just because others have it, doesn't make your case less painful to endure. I was wondering if it was RSD that you have as Jo mar did. That forum is really good for this disorder. Do not be satisfied if your quality of life is that bad. There has to be other options for you, through another doctor. You can get your records from Mayo clinic and go forward. They are not the end all of help. I went there too years ago, and was not very fond of what they told me eithor. There was help for me besides what they said. Perhaps there is someone in this forum that can lead you to another specialist in the state you live in. Do not give up on life. Your pain can be better controlled. Seek a pain specialist. That is what I wound up doing, and he gave me back a quality of life. I can feel how sad you are, and I sure wish there was something I myself could do to make your situation better. There are lots of good souls on this site who will support you no matter what you have to go through. I hope alot of people will respond to you with good suggestions. ginnie:hug:

Welcome to NeuroTalk, Jeff.

You need to come to our Peripheral Neuropathy forum and start reading the Subforum and the posts.

There are some things YOU can do for YOURSELF... but you need to inform yourself about them, and share your details with us, so we can find some hint your doctors may have missed.

See you there!

am thinkng Crp= C reactive protein, a measure of inflamation

Have you tried dietary changes? With the slight RA issue you might be having an autoimmune response to what you are eating, like gluten or dairy. It would be worth a try seeing the list of meds you have to take. Give it time if you do, nutrition interventions take longer then pills - mainly you are solving a problem, not masking a symtom and that takes longer!