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-   -   Venous tos and rsd - new member (https://www.neurotalk.org/thoracic-outlet-syndrome/163318-venous-tos-rsd.html)

Mjg13 01-05-2012 10:15 AM

Venous tos and rsd
 
I was finally dx with venous tos (75% mechanical occlusion of subclavien vein) feb 2011, symptoms started 12/10, in beginning were deep itching in breast that led to swelling of my arm and purple color along with the rest of typical tos symptoms. The 25 of feb I saw a thoracic surgeon who completed a first rib resection three days later. Extremely painful , had vats w/ chest tube 4 days in hospital. My symptoms never got better only worse except the color of my arm and hand changed from purple to blue/red to blotchy, I could not be touched on my upper right side at all ( sound familiar?) finally dx with rsd but lost the use of my right hand. Nerve blocks and meds didnt work. I was told use it or permanently disabled. I forced myself to use it and 9 months later begged to go back to work and did. It hurts like hell, I keep pushing forward always wondering if I have rsd or a failed surgery, fustrated and angry. Left side is beginning same symptoms. I am not on meds, the burning and stingy is the worse and second is the pain from swelling and cold hand. Who knows how I've pulled it off. Good actress? :)


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