New here
 

Hi everyone. I am new here. I have systemic Lupus, Fibromyalgia, sjogrens, and a host of other autoimmune issues. I am hoping to meet others here to share in our journey as we do our best to stay as well as we possibly can.

Thanks for reading and I am very happy to have found you all.:)

MissRain

Hello MissRain and Welcome to NeuroTalk!

I can relate to the autoimmune stuff - I am currently diagnosed with UCTD (undifferentiated connective tissue disease), Fibromyalgia, Sicca syndrome (a cousin to sjogrens), Raynauds, etc, etc, etc...

I noticed that you live in New England. I also live in New England. Have you had a hard time finding a good Rheumatologist? In my area there are only a few Rheumy's (and only one takes my insurance) and they are OK but they have not been great - but I don't have any other options without traveling to a major city (which is too far away for me). My primary care doctor is actually better than my rheumy at helping me manage my symptoms, so at least I have one decent doctor.

Anyway, I just wanted to say hello welcome you to the forum.
:)
Liz

Hey Liz:) Thank you! I have a wonderful Rheumy. I live in the NH area. Feel free to pm me if you like. YES, a good doctor makes all the difference in the world. My doc is wonderful about listening to me and he takes ALL the time that I need for each visit. I often have to sit in the waiting room for an hour, but I also know once I get in there is no way that he will rush me. It really is worth just bringing a book and waiting. It seems most difficult when we don't feel well and we have to find those that will take our insurance. I just went through that Monday when I had to find a new eye doc. Grrrrrrrrrr

Nice to meet you too!! Hope you are doing okay...

Welcome, MissRain!!! I've had Graves' Disease, have Myasthenia Gravis, gluten sensitivity, and some type of arthritis. Unfortunately, my appt with the rheumy had to be canceled because he doesn't take my insurance. I've yet to call my GP with the bad news so they can try to refer me to another one who does.
Like Wittesea, I tend to depend on my GP. I'm between neuro's (for the MG) and don't have a rheumy yet. But I do love my little GP! She always takes whatever time I need, and keeps up with all my many problems. Besides the above mentioned autoimmune problems, I've now got underactive thyroid, osteoporosis, and am in remission for cancer (8 years in July, hooray!)
Hugs,

Hi Loisba! nice to meet you too! :) I will keep my fingers crossed that you find a good rheumy that takes your insurance. I hate it when we go without the care that we need and deserve because of some insurance issue. I am very happy that you like your GP. Bless her!

Hi, Miss Rain! I've not yet started to research the rheumy's available. I told my Dr's office, they want me to call and find out which ones I can see, and bring them a list. Understandable, but I've been short of time, and long of tasks lately!! :D
Meanwhile, old "arthur" hasn't been bothering me too much. Every once in a while I get a flare-up which brings on the aching and fatigue. As if I needed more fatigue on top of the MG.
Hugs

Hi there welcome,Sjogrens,and pn and i'm sure i'm forgetting something hmmm oh well glad to meet you....Sue i just know there's something else,guess i'll have to read that list again!!:confused: oh yes that tooo

LDN/for auto immue disorders
 

Hi Everyone, I am new to this site. Basically I am on for my husband who has MS. My big thing is LDN because he has had such great results with it. My mom also started about 2.5 months ago for PD and she feels much better.

It seems if one is having more than one auto-immune disorder at the same time it might be a great idea to look into LDN as a treatment. Basically it is used for all of the autoimmune diseases that are listed under this thread. I am also on a chat site for LDN with over 3300 people on it (too many to keep up with), and I have saved many stories regarding people experiences with LDN and different ailments. I would be more than happy to forward them one to anyone that would like to read them. Also you can log into the following web page to read my husbands story. He is doing fantastic. It was a real miricle for him. (seems to work for about 85% of people that use it for auto-immune disorders).

http://www.webspawner.com/users/introtoldn/index.html

Best of luck to all, Aletha