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-   Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)
-   -   what a flare (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/163651-flare.html)

gabbycakes 01-20-2012 05:48 AM

what a flare
 
Hi All,

I have been under enormous stress both very good and extremely bad, which I think makes it even worse. Not to go into all my good happenings and problems I just wanted to say I have had RSD for 8 years just this past Jan 4,
that was my disgnosis day, funny how we remember that. Sorry I got off track. I had to go into see my doctor which I haven't done outside of my routine 3 month visit because I was so sick,increased pain, anxiety through the roof, felt like I was going to throw up, headaches and just plain sick. My husband had to take off work to drive me which is unheard of.This is not my normal behavior so my point is if you are feeling increased symtoms and your under STRESS please take care and step back. I really scared myself I thought I was going to pass out in the shower I was trying to get ready for work yesterday when it just all hit me I just couldn't do it.

He gave me some medication, I don't take much of anything anymore so I had nothing to help my symtoms, wants me to see my specialist in NYC which I'm going on Monday, have some bloodwork done just to rule out anything else, I'm also hypo-thyroid and do nothing for the 3-4 days, which it's cold and snowy so I'm actually looking forward to the break.

I know we have all read that stress is a big contributing factor with RSD but I never experienced it so bad as this past week outside of after I have done ketamine treatments.

So everyone please be kind to yourselfs. I never give myself a break but I won't be doing that anymore. It really scared me.

Everyone have a great weekend and if your a football fan enjoy the games on Sunday. I'm a Jet fan we all know what happen their, but my son is a Ravens fan so go Ravens.

Gabbycakes

alt1268 01-20-2012 08:29 AM

gabbycakes,

I'm sorry to hear you had such a bad bought. I know stress makes my rsd worse has well. Usually it is the bad stress that makes it unbearable. Or any kind of emotional triggers.
I hope you are taking care of yourself and taking a little down time. That is important if we were normal not to mention even more important with our rsd.:hug:

catra121 01-20-2012 11:00 AM

I'm so sorry that you have been having such a rough time. I think the emotional triggers are the hardest ones for us to control and they can cause such havoc with our RSD. I feel like I am constantly coaching myself to not let certain things get to me, to not get stressed out about things, etc. Most of the time it works but sometimes you just can't escape it. Especially when it comes to work. I am really excited to go back and looking forward to it...but I also know that if I take a laid back easy going approach that some may interpret that as me not caring...which would not be the case. I am not looking forward to the stuggle to balance my medical needs for limited stress and the stressful nature of my job.

Take care and let us know how things go with the doctor. It's good to rule out other stuff...but it's always good to remember how important it is to not let yourself get stressed (if at all possible). I hope you start to feel better soon.

ginnie 01-20-2012 12:18 PM

Hi gabbycakes
 
I am sorry to hear that your RSD has given you such a scare. I know others have experienced such a thing. Please be good to yourself. I hope the doctor can help you when you go. Stay warm and do try to enjoy the football games this weekend. I will be watching right along with you. I wish you all the best in your coming appointments, and a speedy solution so you can be more comfortable. I remember I posted to you quite awhile back. I try to remember the people I have met. You will be in my thoughts and prayers. I hope there is less pain today than yesterday. take care of yourself. ginnie

gabbycakes 01-20-2012 04:22 PM

Feeling better already, but still shakie.
 
Thanks everyone for the responses. It truly makes me feel better to know there are others out there like myself. I sometimes get out of touch with my condition like it doesn't exist. But I have to really start thinking of myself.

Went for my blood work and will see my Dr. in NYC on Monday. Just hope nothing is going on.

Again thanks and I hope everyone is feeling okay.

Gabbycakes

ginnie 01-20-2012 06:17 PM

monday appt.
 
Hey Gabby, I will pray for you on monday for your doctors visit. Please do the same for me on Wed. I go for an endoscopy, biopsy and to have my throat stretched, fun again....bah humbug. ginnie:D

keep smilin 01-20-2012 08:28 PM

Quote:

Originally Posted by ginnie (Post 843337)
Hey Gabby, I will pray for you on monday for your doctors visit. Please do the same for me on Wed. I go for an endoscopy, biopsy and to have my throat stretched, fun again....bah humbug. ginnie:D


Dear Gabbycakes...

I'm very sorry you are going thru such a hard time... Our RSD is nasty enuf...and stress is our ignitor.. I hope it helps you to know you are in my thoughts And prayers...feel better very soon and best wishes for good results on Monday... Take the time you need to rest .... positive vibes!!

Hugs, Kathy

ginnie 01-20-2012 08:38 PM

Hi Gabby, Kathy, Gabby
 
I do stay connected to the RSD site, even though that is not my main issue. I have degenerative joint disease, NP is present, so I have an idea of the RSD pain. I have Cervial, throat, and ankle issues that cripple me. The NP in the foot is rough. I so know how much my own hurts, I reach out to those that have RSD and CRPS. I also have a friend in my area that has this, a cousin with MS and a neighbor that had PD. So I try to stay and help comfort as best I can. I also need comfort right now, as this is my second biopsy for throat cancer, and I am sure scared, just like you are with the RSD. None of our conditions are easy to live with. Pain is no fun. I actually do have a prayer list and I do pray every night for those souls on my mind. I keep the names and conditions, in a Noahs Ark Tin, that I have next to my PC. If I forget, I can then look up each persons name and condition. In this manner I try real hard to comfort those that need a good thought their way. Take care of all of you, and I hope you sleep well tonight. ginnie

gabbycakes 01-21-2012 05:47 AM

Thanks everyone. I feel better already. Did the blood work yesterday hope it all comes back okay. I just hate all this ..! That's how I think I get myself in trouble I act as if nothing's wrong. I really just have to start thinking of myself more and take better care i.e. gym, eating habits, rest etc. I actually slept for 6 hours straight last night. When you sleep properly it makes such a difference, I think I even had a dream. That topic has come up, about people with RSD don't dream, the reason we never get into that deep sleep.

Ginnie: I hope all your testing goes well. Keep up posted.

Thanks again everyone. It's nice to be back.

We have about 3 inches of snow already. This will be the first time our new puppy goes in the snow it should be a riot. He's an 85lb, 10mth old American Bull Terrier,Pit Bull, and a tad of Great Dane he's so strong it's unbelievable. But he's a sweatheart and just a big mush. We just love him. We had to put our white shepard of 11 years down this past June what a heartbreak.


Have a pain free, stress free day.

Gabbycakes

catra121 01-21-2012 06:41 AM

So glad to hear that you are feeling better. I hope everything goes well on Monday and that it was just a bad flare because of the stress. It's so hard to balance the idea that you need to push through the pain and try to be as normal as possible with the idea that you have RSD and need to take care of yourself. It's easy to SAY that we need to do this...but the reality is so much harder to live with.

I used to dream ALL the time and they were always such vivid dreams. I rarely dream now except for a bout of violent nightmares early last year when I was also suffering from hallucinations and taking meds that put me OUT for most of the day. Now I feel blessed to just get 4 hours of consecutive sleep...which is a rare occurance but has become possible since the doctor started me on Amitriptyline. Before that I was lucky to get an hour at a time. I think the more regular sleep has contributed to my success with regaining a lot of function...so I am with you in thinking that getting a good night of consecutive sleep can make a big difference.

I don't think I could deal with a dog that large. Mine is 5 lbs and she seems like a handful at times. Prior to the RSD I only weighed 85 lbs...so that dog is as big as I was...lol! Very sorry to hear that you had to say good bye to your shepard...that is truly heartbreaking when we have to say goodbye to our puppies.

Keep us posted...hope things just keep getting better.


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