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Does any of this sound like MG?

[note from Abby: I found this in the "my diagnosis" sticky thread. I'm moving it here so that more people will see it.]

Quote:

Originally Posted by cainca (Post 844528)

Hi All....I appreciate this opportunity to be able to join this forum for some of your input on maybe what is going on with my husband. Back in Aug., his back starting hurting him (lower back on side), bad enough so that he couldn't take our nighlty walks-couldn't walk even a 1/2 a block! So he went to a chiropracter for an adjustment, which was fine until the next day, severe shoulder pain! As time went on he started to lose weight, for no reason, about 35-40 pounds worth since Dec. or so. Then his neck starting hurting too & I noticed that his gait was somewhat off when he walked. When he walked, his neck & shoulder pain was & is pretty bad....then the fatique set in! So he had an upper & lower MRI which showed that he had "arthritis" around C2-C3. Pain tx. sessions were set up with shots, but due to an UTI, he couldn't go through with it. His pain specialist put his tx. off until he took further tests to see what was going on with him (that was after I insisted in him watching my husband walk down the hall re. his gait-it is painful to see him struggle due to the pain. When he is seated or laying down, he is fine! As time went on (Dec.), he had to have 3 rounds of anti-biotics before it went away! Then I noticed a change in his voice...more hoarse sounding in the morning, then got better....now it is hoarse sounding most of the day.
So here we are today....a total of 3 MRI's-including the brain, 3 cat-scans (from neck-abdomen), colonoscopy, chest x-ray, all sorts of blood work, and I think that is it. Tomorrow we are going to see the ENT for a scope test to look at his vocal chords. So here is my question....does any of this sound familiar to anyone as far as any significant symptoms of a disorder? He hasn't worked since early Dec. and is beginning to go stir crazy! He is 57 years old & such a hard worker, this is so hard on him sitting around the house waiting to see why he is feeling this way! I have thought of everything from cancer, to ALS, MG, MS. We are strongly considering going to Barnes! Any thoughts & comments would be appreciated....I think not knowing is worse then knowing, at least you have something to start with! Thanks all, Cathy

From some stuff I've been reading up on... It sounds like lymphoma to me :( hope they get some answers soon.

I know you will think of me as crazy, but did your husband have polio as a kid? What you are describing to me sounds like my husband. It was hard to find a Dr who reconizes it today because its not a TODAY disease. Its an old disease we don't see today. An Older Dr might reconize what is happening. There is Post Polio Syndrom that comes back about 30 to 40 years after they had it. Hope this helps. Good luck.
Bea

SO sorry to hear yall are going through this!!! I agree the not knowing is awful!!! I always assumed the worst case scenerio with myself

Sounds like good news that the MRI's were basically "clean".. have they done a CK level on him? inflammatory markers like Sed rate, CRP?? have yall seen a neurologist and/rheumatologist, and or orthopedist, and or hematologist?? were his CBC and chemistries normal? (sorry for all the questions, I just want to help yall if we can, and the more info the better!) how about EMGs??

Sometimes the hoarse feeling could be something as simple as allergies/run down/fatigued body etc.. Is your hubby or has he been a smoker?

I'll keep yall in my prayers that yall find answers for something treatable soon!

Does your husband have any inappropriate, involuntary muscle tension when he walks?