Hello, new here
 

Hello to everyone. I'm new around here and new to MS. I've been labeled as possible MS by my neurologist. My story started a couple years ago but I didn't really pay much attention then, I would wonder from time to time why I felt so tired and weak but I'd always tell myself I'd go see the doc "next week" but then I'd usually be feeling a bit better. Last summer tho things changed enough that I finally scheduled the appt. Extreme fatigue, muscle weakness, dizziness/vertigo, tingling (mostly my face and right limbs), memory problems, very uncoordinated... My pcp first said it must be migraines, but ordered some bloodwork and a brain mri after a followup appt. Then referred me to the neuro after the mri showed atleast 5-6 white matter lesions. Neuro exam was pretty uneventful as I was feeling better by the time I saw them, was told I have brisk reflexes and babinski reflex. Then came more bloodwork and a c spine mri and lumbar puncture, all was normal, which is good but also frustrating. Now the neuro wants to follow up with another mri in 6 months and referred me back to pcp... Sorry about the vent, just no one around here seems to be able to relate.

Azlin, I think you will find plenty of people here who can relate. Imagine what life was like before MRI's - we were all crazy.

Your symptoms do match MS but there are many, many things that mimic MS. It makes sense for a provider to want to see you again as you must have deficits over time and space. So, they need to follow you.

Do call if there is a new symptom or a worsening of old symptoms before your next appointment.

Glad to have you aboard.
ANN

Welcome Azlin.:)... And we do relate..:grouphug:

Sounds like a simular story I had, only it dragged out over a 12 year span! Keep a symptom journal everyday. Things can come and go and you will forget all about them unless you write them down. A six month follow up MRI is a good thing. It can be very frustrating and a bit frightening, but just hang in there. :hug:

Hi Azlin and welcome to NT! Sorry you have to be here, but under the circumstances it's a great place to be with all the friendly, informed people more than happy to answer questions you might have. Hang in there....we're here if you need us.....:):hug:

hello and welcome

Thank you everyone, it's nice to know I have a place I can come and talk with others who understand. Most of my family believes it's all in my head and I was beginning to believe them before I saw the neurologist. She of course agreed it's all in my head, but for different reasons than my family believes :)

My husband is starting to come around and understand more of what's going on which has been a big help. We've got 3 little ones and sometimes I just can't keep up with them and the house. :(

I was seeing my neurologist every 3 weeks, so I was caught off guard when she suddenly wanted to follow up in 6 months. I guess I felt like she had given up on me. But, I understand that we may be in the waiting game to see if anything changes.

A symptom journal is a good idea, I'm going to start that today. I was sometimes having trouble remembering what had happened over the 3 week span... 6 months would be very difficult to recall when I go back for the follow-up.

Thank you again to everyone for the warm, understanding welcome :hug:

Hi! Welcome to NT. :welcome_sign:

Those of you with small children to raise have my utmost respect and awe. I remember how difficult it was to raise my two boys in seemingly good health. I can't imagine trying to do that now.

I'm glad to hear you've got a good Neuro in your corner. It's a long process for most of us to get a diagnosis. Hang in there and keep coming here. Lots of fantastic folks who really do understand. :hug:

Azlin, it sounds like you have a great family with an understanding Hubby Even though he can't possibly know what you are going thru, it is admirable that he is there for you.

This is your new home away from home. Please abuse it.:D

Welcome Azlin! As others have mentioned, you will find lots of information and support here.

I'm sorry you are going through this. It sounds as if your neuro wants to wait and see if things change and/or if you have a flare up of more symptoms (MacDonald Criteria - space and time). Hang around and I hope all goes well for you.:hug: