How do you manage your dental appts?
 

Hi, I am new here and have had RSD for a year. I hadn't been to the dentist since developing this monster and was curious about what you all do to manage your dental appts to prevent a spread? (Mine does spread and I have it in my feet, and neck :().

I am desperate for solutions as my dentist is willing to follow recommended protocol for RSD patients but is finding limited info. This makes me so nervous about doing anything for treatment (I have several cavities and need general cleaning, too).

1) What anesthesia does your dentist typically use (sedative pill, twilight sedation gas, local anesthetic injection, general anesthesia, or other)?

2) Is it better to have shorter or longer appts? How long?

3) Do you have a nerve block for your affected limb(s) beforehand to prevent a spread and did this help?

4) How often is best to isit the dentist?

5) Have you ever had your RSD spread to your jaw? If so, how long after the appt?

6) Any other recommendations???


Thank you so much for any advice as I am truly terrified of it spreading any further. :confused:

Well for myself I just finished off invisalign and have regular 6 month cleaning plus I had one cavity filled. I have rsd in my legs and eyes we think plus seems to be spreading but not to the mouth. For myself my dentists were informed about RSD. I explained the condition completly and how it can spread to even the mouth. That uneeded things that can cause inflammation or pain can't be done. I always even if the doctor says they know what RSD is I still explain it because I know a couple who said they did but really did not. With my filling he said he did it in a way that caused the least inflammation and my orthodontist with the invisalign was extra gentle etc. I did not notice a difference in my actual rsd areas on or after the apt.
You should not need any numbing injection or sedative for a cleaning. I never get one. You are supposed to go for cleaning every 6 months. The apts are not long so not sure what you mean by that.
I understand your concerns though trust me