spinal myoclonus
 

hello I am new to this site I am asking for info on behalf of my hubby, hes in his early forties and has had cancer twice [two different types] He has a damaged nervious system due to the treatment, he also has myoclonic jerks, ataxia, an essential tremor and now has been hospitalised twice for 4 weeks total in the last 9weeks with what the doctor says is spinal myoclonus but at first they thought it was epilespy as when he fits they look like epileptic fits he has in excess of 5 a day does anyone have any info on this they can share with me and what kind of treatment they have had?

Hello Mammy
 

Welcome to Neuro Talk. I hope that there will be alot of people to help you with the problems your husband has. You are both experiencing alot of stress with all this trouble, and its good your sought help. I do not know about this particular condition. There are those that may however have experience with this kind of trouble. I am so sorry you have had to through all this with cancer, and then the side problems due to the treatments. Please do look into any of the site here that deal with brain issues. You are welcome to join into any conversation too. Please be at ease here, there is lots of compassion and helpful information. If you need to talk I am here for you. Thre is also a cancer forum that may provide some help. There is a search bar at the top of the page. Just tap in what condition, and it will lead you to that forum. I have been here several years, and I still get confused a bit, so don't worry if you wind up on another site. There will be more people to help direct you. In the meantime I will keep you in my thoughts and prayers. I try to make new people feel comfortable and weclome. ginnie

Hello Mammy
 

Welcome to NT! :hug:

I'm sorry to hear what you and your husband are going thru. You'll find very caring people here with lots of support and understanding.
Try checking into the Epilepsy forum. It has alot of great people there and good information. Here's the shortcut link to get you there:
http://neurotalk.psychcentral.com/fo...sprune=-1&f=11

It's so good that you are here.
I hope to see you around the forums

Caring,
Rae

Nice to meet you!!
 

mammy,

Hello and welcome, :Wave-Hello: happy to see you have come to be with us, it a great place to be. As you can see we have a great number and caring fellow members here, welcome to a supportive and relaxing place. Have fun looking into the different forums. Our shoulders are here for support in many ways.

I agree with Rrae on the epilepsy forum then again also check in the following forum on spinal myoclonus:

http://neurotalk.psychcentral.com/forum65.html

Again welcome, looking forward to seeing you around. My thoughts and prayers are with you. :smileypray:

Darlene :hug: