What is happening to me? Help
 

:DHi all! I have been on a quest since early January to find out why I have been feeling the way I have been. Been to 3 neuro docs who say all of my tests, emg, mri, cat scan etc. show no signs of inflammatio or disease. Januuary this year noticed tingling in hands and feet, then in legs, arms, all over. Twitching muscles and involuntary jerking especially while laying still. Also, tongue tingled....oh so many more things.....still docs say nothing. Can anyone help?[/CODE]

Hello and Welcome to NeuroTalk!!
 

apprentice,

:Wave-Hello:Hello and welcome, happy to see you have come to be with us, it a great place to be. As you can see we have a great number and caring fellow members here, welcome to a supportive and relaxing place. Have fun looking into the different forums. Our shoulders are here for support in many ways.

Check into the following forum, there are a good number of friends there to assist.

Peripheral Neuropathy:

http://neurotalk.psychcentral.com/forum20.html

Looks as though you are finding you way around. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you. :smileypray:

Darlene :hug:

Hello apprentice!
 

Welcome to NT! :hug:

I'm sorry about these struggles you are facing. The good thing is that there's alot of great support and information here.
What you describe sounds exactly like Peripheral Neuropathy. Darlene has given you the shortcut link to get you there.
Definitely check it out!

Make yourself at home! This is a very warm community.
You certainly are not alone....

Caring,
Rae
:grouphug::grouphug:

**********

Hi, I'm new here too. I've been recommending B6 for years for people with peripheral tingling. It was actually a doctor who told my mom about it years ago as a way to avoid carpal tunnel surgery. If you're not remembering your dreams, take 100 mg of B6 before bed. As to the mouth tingling, it could be a food allergy or you could be REALLY deficient in all the B vitamins. It can't hurt you to take a high dose multi-B in the AM.

Muriel Dr. Mom

Thanks much
 

Hi, thanks for your words of encouragement and advice. Havent been checking in lately.....but still struggling. Thank you.

Just wanted to say "Hi" & "Welcome!" I am new here as well, but not new to symptoms of numbness, tingling, muscle twitching and random jerks at rest. So you are not alone!!

You would think that time and doctors could give you an answer to your problem, but sometimes they don't. I have had every test under the sun going on 10 years now (only the last 4 have been progressing in intensity.) I have a diagnosis of idiopathic peripheral neuropathy. Which means they can measure that my peripheral nerves are slower than they should be, but they don't know why. My first several EMG/NCS (measures muscle and nerve reaction times) were considered normal, even though I had symptoms.

With every test normal for you, I would suggest you check out the Peripheral Neuropathy stickies concerning other blood tests, like B12 and vitamin D. Hopefully one of your docs have already checked a metabolic panel and thyroid studies, diabetes testing etc. Nutrition and supplementation are very important as well, lots of information here!!

:hug:

Nice to meet you!!
 

sounds like polyneuropathy to me I would get a second opinion because if it is its painfull and you will need help. Best of luck

Hope not
 

I know it sounds like neuropathy to me also even though the docs are saying its not. Thankfully, Im not in much discomfort but my mind can only wonder what is happening and sometimes I think the worst. I have seen a few neuro docs who have done a few emgs, but so far nothing detected. With my legs and feet and hands and other symptoms making me feel the way I do, I will continue to search for answers. Thanks for your support.

AP

Very familiar!
 

Hi, your story sounds very familiar to me! I started tingling in my arms nearly 4 months ago now which has spread ALL over my body including my toungue roof of my mouth and into my throat. Sometimes it is a stabbing pain sometimes freezing never totally goes at best it just kinda hums/buzzes. I'm in the process of waiting to see a neurologist the NHS system here means I have to wait 2 months as there is a waiting list. My doctor has run some bloods which I get the results from on Wednesday.
How are things going for you, any answers yet? Has your doctor diagnosed periferal neuropathy? No one can explain my toungue tingling - sometimes I think they think I'm making it all up and am a bit bonkers!
I am on Gabapentin 3x daily which helps a little especially at night when its at its worst.
I hope you get some answers, keep me posted I'd be really interested to see how things go for you.
lgr6616 xx