Im working with a short rope. Im new here
 

I had an aneurysm in January 2011. I believe Im having onset, partial seizure. I stare, laugh, cry, shake, get heavy, loose time, and the newest thing, i'm having difficulty breathing at times. It started about 6 months ago, six months after crainiotomy. I have a clip in my head to stop the bleeding. I had an eeg, but no concrete confirmations from a medical professional that, I am indeed experiencing seizures. I feel like im going crazy. I see little lights, tongue gets numb, sometimes i feel jerky, like one big spasm. Im on an emotional rollercoaster. I've gained weight. I get ringing in ears, but the worse of all these is the heaviness. It feels like someone is sitting on me. My colleagues say, I stare off in a daze, not to mention I get confused, have trouble focusing and completing simple task. I get extremely sleepy in the midday, no matter how much sleep I had the nite before. My heart races and is audible in my left ear. I've written all this down and discussed with my dr and neurologist.....still nothing. I took lyrica for a short period, it helped, was told it was for itchy scalp from surgery and not given 2 me because of seizures etc. I also took metoprolol for about 2 weeks, it seemed to amplify my symptoms, was told it wouldnt cause any of the symptoms ive been having, so i stopped taking that also. Can anyone relate, help, share. My rope is getting short. Ive been all over the internet looking for help, answers or someone just to share all of this with, someone that can relate to me and not think im being extreme. Heck, I almost died, wouldnt you be extreme 2?

Nice to meet you!!
 

Sah-PCA,

:Wave-Hello:Hello and welcome, happy to see you have come to be with us, it a great place to be. As you can see we have a great number and caring fellow members here, welcome to a supportive and relaxing place. Have fun looking into the different forums. Our shoulders are here for support in many ways.

I do have epilepsy myself, I have had it for 48 years. I am under controlled at this time. There are a great number of things you can to help them to be under control. One is to always keep a records of the seizure with what you went through. Afford bright flashing lights, just cover you eyes. Take vitamin B12 complex once a day. Cut back on caffeine, starch foods and carbs and start eating foods high in fat. Those are some for you to go with.

Check into the following forum to assist you:

Epilepsy:
http://neurotalk.psychcentral.com/forum11.html

Looks as though you are finding you way around. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you. :smileypray:

Darlene :hug:

Howdy Sah
 

The greatest thing you could do for yourself has already occurred. You, came here and opened up searching in an effort to find others of similar situations who will gather around you.

As for me, my situation is far different, but I stalled here on your post thinking I would bring to you a parent's perspective seeing their child endure a seizure. Our eldest of four is beset with complicated multiples of psychosis and the awful side effect not of meds, but of the compound thoughts which race around his mind is the onset of what is described as a psychogenic non-epileptic seizure. These have been known to hit him many times in an hour several hours throughout a day, although in the past year we have thrilled to realize he has experionced only ONE.

We never know why they manifest. He has been through observational study at a nearby medical center complete with EEG and Video monitoring. All we learned was stated in my first paragraph. No means to avoid, alert, forewarn, or calm such episodes was provided to us. Thus, we watch over our son with awareness tomorrow could be another, while taking the blessing of freedom from it if nothing occurs.

I pray you will connect with others here in this safe place who will have similar issues through which you may each share and compare, knowing there are folks who deeply grow to care for you. That very deep sense of care in this place is exactly what it is all about. May you find it and have companions who gather around you.

Blessings on you,
Mark56:grouphug:

Im praying for you and your son. I pray that you remain strong in the event it takes a little longer for him to get better and I pray they find a solution, medicine, treatment to make him better or cure him, preferably, the later.
Im about done with all this, Im exhausted. I have not found one soul in 8 months of searching that is experiencing what I am. I, very well may be having non-epilptic seizures as well.

I cant get support from my own family/friends, and yes online support groups have been helpful, but not the same. Sometimes I feel like im talking to myself, you know what I mean? I thank those who have encouraged me and been supportive of me without even knowing my name.

God Bless us all, no matter the need. It might be very well time for me to see a Pyschiatrist? My GP suggested it about 3 months ago. I dont know, tired of pretending Im ok, and Im not.

Thank you Mark56. I will take all that you said to heart.

[QUOTE=Mark56;857170]The greatest thing you could do for yourself has already occurred. You, came here and opened up searching in an effort to find others of similar situations who will gather around you.

I took the initiative and still came out on the short end of the rope. I am no more surrounded than the minute before I joined. I am as isolated as am I needing someone to talk too. I dont think this is for me. I actually feel worse, if that is possible. Thank you too those who took the time to offer your support, it is truely appreciated. I ask that God bless you and yours, from the tip of your toe to the end of the longest strand of hair on your head. Thanks again,
Mary.

Chow!!:Dunno:

Hi Mary!
 

I just wanted to send you a :hug: (((HUG))) :hug:

I understand what it's like to feel isolated. Please know that this is a very caring place. Sometimes it might be a bit slow and responses may be delayed, but rest assured you are important and want you to feel at home here. I remember when I first joined, I didn't really know how forums worked and it took me a bit to settle in.

I see you've been going thru a very rough time. I know how lonely it can get when it seems like those around us don't really understand what we are going thru. Although I don't have the same health issues that you are faced with, I do know what this can do to us emotionally and mentally. It really does help to talk. I started seeing a psychiatrist. It helps but between you and me I get much more out of this forum. ha.
If you feel inclined, here's one of the forums here that we can share and receive emotional support. I hope to see you there..
http://neurotalk.psychcentral.com/fo...sprune=-1&f=85


I sent you a friend request. May I have the privilege of being your first friend?

Caring,
Rae
:grouphug:

I'm so sorry to hear what you are going through. I've heard that a deficiency in Manganese can cause seizures. Metoprolol did not work for me either. I had chest pains all the time and my pulse would get low. I'm on Neurontin which for my nerve pain from Chemo, however it also helps seizures and acts as a mood stabilizer and I can't tell you how much it helps the nerve pain. It' not addictive like the other drugs I have taken. I may cause a little water retention but not bad. Please hang in there. I almost died of stage iv breast cancer 5 years ago and today I'm cancer free. It doesn't go without symtoms from the therapies, but I'm alive and I prefer that than the alternative. All the best you. Grab whatever you have left of that rope and hang on! I really mean that! Somewhere there is an answer. Don't stop until you find it! Charlyn

Serenity.
 

Saw neurologist yesterday. I didnt say what should have been said, told the important stuff tho. Going to start lyrica again. My diagnosis, Migrain Phenoneomal (spelling). Anywhoot. Im just going to chill sit back and take it all in. Pretend nothing strange is going on, pretend it never happened. Make it a permanent part of my past. Exhailing!!!

God, grant me the serenity to accept the things I cannot change,
Courage to change the things I can,
And wisdom to know the difference.