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-   Arnold Chiari Malformation & Syringomyelia (https://www.neurotalk.org/arnold-chiari-malformation-and-syringomyelia/)
-   -   heavy head (https://www.neurotalk.org/arnold-chiari-malformation-and-syringomyelia/165890-heavy-head.html)

mikegiar1 03-01-2012 08:54 PM
heavy head
 
those of us that has this problem besides laying down and resting your head or wearing a collar. anyone have any other solutions

dtwaitmh 03-12-2012 03:46 AM
Sounds like you might have CCI (cranio-cervical instability). Have you ever been checked for it or EDS? I have these same issues so I do understand along with a list a mile long of other ones. Sorry I know this is so unbelievably frustrating.

Quote:
Originally Posted by mikegiar1 (Post 857155)
those of us that has this problem besides laying down and resting your head or wearing a collar. anyone have any other solutions

rainbow2 04-21-2012 10:57 PM
heavy head
 
Quote:
Originally Posted by mikegiar1 (Post 857155)
those of us that has this problem besides laying down and resting your head or wearing a collar. anyone have any other solutions
Some days my head feels like it weighs 100 pounds. I've been diagnosed with Ehlers-Danlos, CCI (cranio-cervical instability), and a retroflexed odontoid. :eek: A decompression and cervical fusion is in my near future.


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