Frustrated with no Dx, but hope is alive
 

Hi gang:hug: I've been going to a neurologist for a year now and still no idea why I'm having neuromuscular symptoms. Thought it would be nice to have someone to share thoughts with. I'll be around to see when the gang is all here :wink: bye for now, tellyourheart

Hello & welcome,
If you will share some of your symptom details maybe we can help point you in a direction.

Can you tell us some more?
 

tellyourheart,

Can you tell us a little more about your symptoms? Where do you have most of your pain and stiffness? Is it the same during the day as it is at night? What tests has your neuro ordered for you/what tests have you had?

Has anyone talked about fibromyalgia with you? Your neuro probably would not because typically, neuro's don't recognize "fibro" per se. This is because there is no specific test that can be used to diagnosis this. You may want to consider going to a rheumatologist,
as they work with fibro patients all of the time.

But, the more info you can give, the better advice you will get from people on this site!

Take care,
Nancy-H

Have you had an MRI yet? I'd start with that.


Good luck...

LIZARD :)

Hi TYH!
 

It's very good to meet you! Welcome to the NeuroTalk forums! If you don't mind my asking, what kind of neuro-muscular problems are you experiencing? I've been having those type problems for five years now with no diagnosis. I know how frustrating it can be. Anyway, I hope you stick around and join our friendly group, and I look forward to talking to you later. Good luck!

Idealist

Welcome, tellyourheart! As you can see, there is no end to advice and well-wishers here. I'm waiting, like the others, to see what kind of neuro-muscular problems you are having. As for myself, I've got Myasthenia gravis.
Hugs,