|
chronic porphyria
i everyone.. i have porphyria plus hemochromatosis.. but i think the 2 go hand in hand. i suffer constant nerve pain in my arms and legs. my specialist put me on some pain killers, but i dont like the side affects. dry mouth, blurry vision.. plus she is taken a pint of blood from me every fortnight , to try to get my iron levels down.. i read about this heme, but it is not avalable in Australia.. .. im hoping to find someone out there, that also has porphyria, and understands what im going through.. :grouphug:
|
Hello muzzywuzzy
Welcome to NT!
We've got a very good forum for nerve pain. Lots of information on it and the folks are very supportive. Here's the link to get you to the Peripheral Neuropathy forum: http://neurotalk.psychcentral.com/fo...aysprune=&f=20 Just holler if you have any questions or need help finding your way around! It's great to have you! Rae :grouphug: |
Nice to meet you!!
muzzywuzzy,
:Wave-Hello:Hello and welcome to NeuroTalk. Happy to see you have come to be with us. Just let us know if we can be of any help. There are great number and caring fellow members here, you will see we are supportive and relaxing place. Our shoulders are here for support in many ways. Looks as though you have already been making your way around. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you. :smileypray: Darlene :hug: |
thank you
thank you.. and beleive me its a total fluke me finding my way around, truley i have no idea what im doing hahah
|
| All times are GMT -5. The time now is 01:36 PM. |
Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.
vBulletin Optimisation provided by
vB Optimise (Lite) -
vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.