I am so lost on here!
 

I am trying to find my way around this forum and feel like I am just missing something. When I find a topic it seems like all the post are so old. I posted something and have no idea how to find it again now to see if anyone has responded. Help me please!

Welcome to NeuroTalk:

The easiest way to find your old posts, is to click on your name and select "profile".

Once there click on statistics tab and your posts will be listed there.

Some of our forums are slower than others. So some patience is needed some days.

Thanks!!!!

Hi pjdk
 

Welcome to Neuro Talk. I too was very very confused when I first got here. Just relax, and there will be others who can help you navagate around the site. You got a post in, and that is the beginning. All will become much easier as time goes on. I still get lost sometimes two years later, and don't know how to cut and paste a post for a specific site or thread. I am learning to.
You can respond in any forum your want, or post anyway you want. All conversations are open to you.
At the top of the page is a search bar. If you tap that, and tap in the particular medical issue you have, such as MS, Traumatic Brain Injury or TBI, or any other medical problem. That will get you to that site where others have the condition you do. If you look to the right of where you posted, there is a long list of different rooms or threads you can go to. Start to play with the site, investigate. I was told, nothing can be broken, so go ahead and play a bit, and listen in on some of the forums. There is a social security forum, spritual forum etc. All are open to you. This site is great for support.
Tap back to us, what ever questions you have specific to your medical problem, and one of us will be along to help you. You have found a very good and supportive site. You will make some friends along the way. I came here with severe Cervical issues, facing a big surgery, I was crying, upset, depressed, all of it. I found this place, just like you did, and I never left. I am glad to welcome you in to Neuro Talk. Feel at home, ginnie:hug:

Ginnie,
Thanks for the help. I have been struggling with health issues since my late teens and early 20's. I have a list of surgeries that I have to keep in written form or I will never remember it. I saw a Neurologist yesterday that said I was depressed to the point that I would need to consider going to a shrink and get a better control of it. I cried and told him I hurt all the time and that is why I was depressed and I needed someone that did not just think I was too complicated and shuffle me off to someone else. That the pain I am dealing with constantly is what needs to be addressed. Thanks so much for the note.

i pjdk
 

I am hear to listen to you anytime. There will be others too that can try to offer support. Type in Cronic Pain in the search box, and you will find there are all kinds of people who live with cronic pain. I do too, and I go to a pain specialist. I don't want you shuffled around doctor to doctor either. That is very frustrating. if you can get a primary health care specialist, he may be able to direct you better to who you need to see. I have had two cerival spinal fusion, and 6 other surgeries, so I know exactly how you feel. I am sorry you are young to have to go through all that. I was 55 when all the **** hit the fan. I try to pray alot too, just to calm myself, and find that moment of peace. Truely, you do need someone that is permanent in your corner, for pain, and psychological problems that Result from living with cronic pain. The depression goes along with cronic pain. A doctor needs to understand this. You most likely would not be depressed at all if you didn't have all the pain. I get that. Don't hesitate to go for council either. That was a good step for me. I do have a psychologist that I talk to often. He has been a positive influence in my life. My PCP is extraordinary in that he listens to me. Those are things you need to find to have a better quality of life.
Where are you located? What kind of surgeries have you had? . It is OK to talk about it anywhere on this site. There are so many here who can relate to what your experiences have been. Take heart, and be strong. find the medical care you need to feel more comfortable. ginnie

can drop a message
 

-pjdk, if you need to talk to someone drop a message to me and i will try to be there just leave a time and i will try to jump on line at that time. to leave a message click on my name and you can find where it says leave a
message. i sent u one the other day, u may not have seen it. at the top right of the screen you see welcome, then your name 2 lines down you see private message if there is a number over 0 then you have a message just for your eyes. i;ll check every couple hrs to see if you leave a message.
in my opion most of have been told to see a shrink, we don't need to what we need are doctors to read up on SM & ACM. what i did was researched on line and printed out everything i could and took it to my doc and told him to find me someone. what he did was started to research himself and started with mild pain meds and went to stronger meds after awhile. i found even some neuro haven't a clue. you may have to keep looking for a doc that listens to you. good luck.
tc and be safe. try to be strong

Hi pjdk
 

You can private message me anytime too. Upper right corner of the page. Don't loose heart. ginnie

Thanks for the quick reply
 

Ginnie and Mike,

Thanks for the replies. I get the chance to check my messages often throughout the day but a live chat room would not work for me. My journey began a very long time ago. Migraines as a little girl. I have had to lumbar surgeries with the second on being a fusion way back in '99, I have had Carol tunnel surgery on both hands (left one twice), left ulnar tunnel release, left shoulder repair, gastric bipass surgery (I lost 126 pound) but because of the depression and pain I have gain half of that back. I have had gall bladder, hysterectomy, two kids (4 angels in heaven) I have mixed sleep apnea, problems with fast and irregular heart rate, the list goes on and on. I just need to get some relief. I did see a new doctor this last week who did order a new MRI, when I was treated for a possible stroke in '08 I had MRI that showed a synix and a cyst in the pineal gland. I have started tracking down all of my records so that I can compile thing and try to map it out so that I am better informed. My friend has been diagnosed with Chair I and that is who is helping me with this. Our MRI are identical and add the syrinx to mine and the symptoms that have me side lined most days. I still manage to home school and do daycare but I am pretty wiped out but the weekend.
:hug:

Mike I did get your message but have not had the chance to reply. I do not get the opportunity to check things as much on the weekends. Hubby and I tend to keep busy with the kids and just playing as a family. Thanks for taking the time to send me the note though!!