NeuroTalk Support Groups - A surprise discovery at NIH

NeuroTalk Support Groups (https://www.neurotalk.org/)

- Parkinson's Disease (https://www.neurotalk.org/parkinson-s-disease/)

- - A surprise discovery at NIH (https://www.neurotalk.org/parkinson-s-disease/166322-surprise-discovery-nih.html)

A surprise discovery at NIH

The clinical trial that many have spoken about involves physical and mental testing first off then on - then u you take a tapping machine home and do tasks once a week that goes straight to them thru a flash drive. One clinician said i could take any med that wasn't for pd. That gets to be a gray area when you talk about klonopin [my spelling] and xanax.

Anticipating this trial has caused anxiety because i have such painful , debilitating dystonia in the morning. i laid in the tub in hot water - which reallly helped even before i took one pill pill a clonazapam/ i also took my synthroid.

i was locked but nothing like i usually am. i could do everything they asked , including walking , turning around and walking back. they said my scores off were so low they were almost normal range and attributed it to the klonopin , PT and exercise.

best of all, they asked the doctor and he said for me to take the klonopin everytime. the clinician told me when i was off ,she felt it more on the left[good] side tthaln the right.[bad side]
my left side always is worse than my bad right side when i have dystonia. nowconfirmed thru physical exam.

ok here's the real spelling of the med: clonazepam. it is antispasmodic for one thing.

how long and side effects?

Quote:

Originally Posted by paula_w (Post 859730)

The clinical trial that many have spoken about involves physical and mental testing first off then on - then u you take a tapping machine home and do tasks once a week that goes straight to them thru a flash drive. One clinician said i could take any med that wasn't for pd. That gets to be a gray area when you talk about klonopin [my spelling] and xanax.

Anticipating this trial has caused anxiety because i have such painful , debilitating dystonia in the morning. i laid in the tub in hot water - which reallly helped even before i took the pill/ i also took my synthroid.

i was locked but nothing like i usually am. i could do everything they asked , including walking , turning around and walking back. they said my scores off were so low they were almost normal range and attributed it to the klonopin and exercise.

best of all, they asked the doctor and he said for me to take the klonopin everytime. the clinician told me when i was off ,she felt it more on the left[good] side tthaln the right.[bad side]
my left side always is worse than my bad right side when i have dystonia. nowconfirmed thru physical exam.

ok here's the real spelling of the med: clonazepam. it is antispasmodic for one thing.

That is great for you Paula, but I notice this drug is in the benzo class, which I have read much negative stuff about.

For you, what side effects have you noticed and how long have you taken it?

it makes me tired

otherwise it relaxes me a little - but nothing else yet; i also take xanax but maybe instead i need a slop of gabba. it should slow down the cramping. sorry i was just prescribed it upon release form the hospital so it's been a few months.