Neuropathy Expert spoke at our meeting last night
 

Hi All.

Last night Alan and I went to our monthly Peripheral Neuropathy Support Group meeting in NYC. We were fortunate to have as our guest speaker, Dr. Norman Latov. Dr. Latov is Professor of Neurology and Neuroscience, and Director of the Peripheral Neuropathy Clinical and Research Center at Weill Cornell Medical College.

He very kindly consented to my recording his presentation. I can't upload long videos to youtube. So I did the best I could and made one video out of various clips I took during his presentation. There were no microphones so you might have to adjust your volume.

http://www.youtube.com/watch?v=2Tc5Lz-g8Nk

I hope you find his presentation informative.

Melody

Cool! Thanks Melody!

Anytime, Mrs. D

Oh, I found something new about neuropathy. I'm going to copy and paste a link to this thread. It's a new treatment.
Melody

Hi Mrs. D.

This morning (and I forget how I came to find this site), I stumbled upon this website.

http://www.neccp.com/chemotherapy-in...uropathy-cipn/

They are located in Stamford Conn. The doctor is a chiropractor and I phoned them. Spoke to a very kind nurse.

I asked her "what's the difference between this and using a tens or a rebuilder?" and she explained they put the electrodes "not on the place of pain" but higher up. And it affect neurons in a special way.

Insurance doesn't cover it and it's a course of 5 or so visits, and it's about $2000. So I did ask the pertinent questions.

I also asked if they treated anyone who had NON chemo induced neuropathy and she said 'oh yes"

So if anyone is interested they should check out the website.

Melody

Hi Melody. I have been researching PN for many years. I have never read where if the found there cause of PN there was anything they could do about it. Thirteen years ago i took ZOCOR. Unknowingly it said PN was a side effect.
Within 3 months of taking it i had PN.

Why spend millions of dollars trying to find the cause when their is nothing anyone can do about it. I look for ways to lessen my pain so i can have a better life.


Less pain to all. GEORGE

Thanks, Melody, that was very interesting to see Dr. Lotov--I've heard about him for a long time. Joan

There are many posts (many of them negative) about
Calmare therapy at RSD forum.

Search the word "Calmare" at the top of the first page in the search function and you'll see actual experiences with it.

In general it is a "hot topic" here, and receives many heated replies.

Oh you are quite welcome.And be assured, whenever we have a keynote speaker at one of our meetings, if I'm able to record it, it will show up on this very forum the next day.

All the best

Melody

Really??

I'll be sure and look them up.

Thanks much, Mrs. D

Some people break up and serialize uploads. I've seen it done with old movies that have fallen into public domain. Keep the same title with "- Part 1", "- Part 2", etc.

Doc