Living with rsd
 

Hi everyone, new to here. Trying to find people who can relate to me. Long story short...started with severe burning about a year and a half ago (felt like my skin was melting on my left arm and left part of rib cage)..originally surgeon thought something went wrong with my prior cervical fusion but everything was negative. After me never giving up and showing him my arm was changing colors and later realizing I was having horrible temperature changes and finally atrophy setting in was I finally dianosnosed with rsd. As I moved on to find a dr to help I was lead to the same place of needing a scs. It had a few difficulties at first but worked very well for my arm, 3 months later I had a peripherial stimulator to cover the rib cage. My pain has substantially reduced....but my body and mind has taken such a beating...I don't know where to go from here. I still have trembling and weakness in my hand and arm...leads leave me restricted..anyone feel this way?

Hello!
 

Welcome!
I'm sorry to hear you are among us suffering this burning pain.
I was diagnosed with PN in both legs, and when I got my SCS they changed my diagnosis to RSD. To this day I'm not sure which side of the fence I'm on since the 2 have so many similarities.
I'm glad your SCS is working out for you! Mine too :). I see you've found the SCS forum.
We also have a forum specific to RSD/CRPS. Here's the link to get you there:
http://neurotalk.psychcentral.com/fo...aysprune=&f=21

Lots of wonderful people there. I don't know what I would've done without this forum. NObody in my community comprehends what RSD is. PN is starting to become 'known' here where I live, thanks to a commercial on tv advertising a specialist 3 hours away.

It's great to have you. You'll be amazed at the support and information there is here.

Rae
:grouphug: