New
 

Hi, im new...its been over 6 months of insane pain that makes it so hard to walk, not sure if i can stand another day of it!

Hi, Cass!

I am new here as well. Are you taking any vitamins for your condition? There is a wealth of information on this forum. I have found a lot of help.

I am so sorry. Yes, learn all you can. Lots of information here about supplements, foods, blood tests and books, links to help. Too many doctors do not seem to learn what they need to help. :(They just know how to write prescriptions.

Integrative MD's have been wonderful and helped me with my CFS, POTS (Postural Orthostatic Tachycardia Syndrome) and neuropathy with no meds. I have done hours of research every day and we work together. We have to heal the nerves.

Hi...I am also new...I too have bn experiencing CIPN for abt 6 months...my last chemo was in Nov and a few months b4 the end I started getting the numbness, tingling, pins and needles feeling in my feet...my ONC said it should subside after the chemo but it hasn't yet! It has gotten worse. I tried the Neurontin cream and pills...nothing...will be seeing a neurologist next week....I hope you feel better

Hi Cass
 

Welcome to Neuro Talk. I really hope you get some help for the pain you are experiencing. Do you have a pain specialist? a Neurologist? those are two fields that you might want to investigate. If you have a diagosis, up at the top of the page is a search bar. Just type in the dianosis, and that will bring you to the forum with that condition. You found a great site and some caring people here. I will be here to listen to you and try to help. Again welcome to Neruo Talk. I found this site about two years ago, and never left. found some good friends, and help for my conditions. Again welcome to NT. ginnie

Thanks everyone its go to find a place where people understand... i have Peroneal neuropathy in my feet and in the middle of meds, the last one i was on caused horribul side effects. I have been on 8 different kinds but i have kidney issuses that were severly aggrivated by them. I just found out i either have Autonomic neuropathy or a cysts or "some kind of lump" as the doctor called it on my spine that is causing the other major issues im having. Waiting on the doctors to get things together so i dont have to keep being in so much pain. Hope fully i will hear from them today

No i have kidney problems and im cant take any

I also am new here. Hope to get abundant amounts of information to help with PN. I would like to find something to help with the pain at night to help me sleep better.

Then :welcome_sign:

There are definitely abundant amounts of 411; I think I spent the better part of my first 2 weeks here catching up with the Sticky's, Sub-forum, and tried to go back a month or so of current posts. I can be slow/distracted, so it may take others less time... :o It's been over a year, and I can still get lost in the archives doing a search and getting sidetracked... :rolleyes:

Many people get help sleeping with a low dose of amitriptyline. Take a look, discuss it with your doctor, and see whatcha think.

There's also this:
http://psychcentral.com/news/2009/06...tors/6761.html
(English translation: it may also help in the process of regrowing nerves.)

Doc

HJello Rahrah
 

Welcome to Neuro Talk. You will find information here and alot of support. I am sorry to hear you suffer with PN. If you arn't getting enough help for your pain, please go back to your primary care physician and ask for a referral to a specialist. There is is more help for this, and he may recommend a specility field that can help. A pain management physician might help too. You are welcome to talk in any of the forums here, and respond to any posts. Feel at home and weclome. I do hope you find more relief than what you currently are experiencing. ginnie:hug: