Question please!
 

I am new to the forum but not to mg. I have been somewhat in remission over the last three or four years on cell cept. I got off pred about 2 or three years ago. I have been trying to come down on cell cept but I think i came down either to fast or to much. About a month ago I made an unscheduled and obviously unwise drop and now feeling some muscle weakness around my eyes. Its been about two weeks and No Dv or potosis yet, just weakness. I have three questions.

1- has anyone experienced a mild relapse when dropping on their long term immunosuppressant?
2- I know that cell cept took a long time to really work forbus, about two years, but now that it is in my system it should not take as long for it to work the way it was?
3- for what I am experiencing, eye weakness, do u think I should possibly go back on pred to make sure I don't go back to the way I was? Give the cell cept some time to kick back in.

Hi and welcome to NeuroTalk! :) I've posted the link to the MG Form belw. I think if you'll also post your questions there you'll probably get more informative feedback from others with MG. :)

http://neurotalk.psychcentral.com/forum77.html

Hello Arice
 

Hello and welcome to Neruo Talk. Yes there is a forum for your condition. I hope you get your questions answered. Please feel at home here, and go to any of the postings you want. This is a very laid back forum that has lost of support. You will make some friends too. I took a topical immunosupressnt for 10 years in a trail study in MO. I was tapered off it before I moved here to Fla. Hope you have some good doctors to help you. ginnie

How do I post a new question?

Hello John
to start a new "thread" for your question, just go top whichever forum you want to post on and just as you find NEW REPLY on existing threads, you will find NEW THREAD top left of the page...just click that, type in a title and message and then Submit :)

Nice to meet you!!