Question Please!
 

I am new to the forum but not to mg. I have been somewhat in remission over the last three or four years on cell cept. I got off pred about 2 or three years ago. I have been trying to come down on cell cept but I think i came down either to fast or to much. About a month ago I made an unscheduled and obviously unwise drop and now feeling some muscle weakness around my eyes. Its been about two weeks and No Dv or potosis yet, just weakness. I have three questions.

1- has anyone experienced a mild relapse when dropping on their long term immunosuppressant?
2- I know that cell cept took a long time to really work forbus, about two years, but now that it is in my system it should not take as long for it to work the way it was?
3- for what I am experiencing, eye weakness, do u think I should possibly go back on pred to make sure I don't go back to the way I was? Give the cell cept some time to kick back in.

Couldn't hurt for a few weeks just for the peace of mind, you don't need to be stressing about if it will come back now. Assuming you responded well to it the first time with no worsening symptoms right away.

Arice- Of course there are those who have exprienced this- I would assume. Just as you go up and find the right dose you get stonger (normally)- the opposite is going to happen when you go down. Sort of constitutes the gravitational pull;)

Im not sure about the second question..I think it may depend on how long you have been on off the cellcept truthfully.

If you are sensitive to prednisone, then no. But if you can tolerate it and these symptoms are impairing your ability to continue on with everyday life, then yes for the prednisone. I take 50mg a day... have for three years. I can tolerate it it very well, or have adapted to cope with it I suppose.

Hope these give you some direction!

Arice,

I hope you are working closely with your neuro during your taper just to keep in touch and let him direct you. If something unexpected happens and you get weaker he needs to know why. He's walked many MG patients down this path and knows what to expect. Best of luck to you.