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-   -   Newbie with Idiopathic Intracranial Hypertension & LP shunt. (https://www.neurotalk.org/new-member-introductions/168138-newbie-idiopathic-intracranial-hypertension-lp-shunt.html)

lalatas 04-14-2012 09:33 AM

Newbie with Idiopathic Intracranial Hypertension & LP shunt.
 
Hi Everyone!
New to the forum and was wondering if there was anyone here with IIH, otherwise known as BIH (benign intracranial hypertension) or PTC (pseudo tumour cerebri)??? I know no one at all with this disease, apart from a few ppl I've met online.

I have an LP shunt and would love to chat with ppl with similar. Mine is giving me grief.... works beautifully in controlling the pressure and headaches, but has given me a lot of back pain - sciatica - and keeps popping out of my abdomen and draining subcutaneously. Anyone else have these issues?

cheers,

Lala

Darlene 04-14-2012 11:37 PM

Hello and Welcome to NeuroTalk!!
 
Lala,

:Wave-Hello:Hello and welcome to NeuroTalk. Happy to see you have come to be with us. Here are a great number of dear friends to listen when you are in need of ears. You will find out we are supportive and relaxing place.

Check into the following forum to receive some assistance:

General Health Conditions & Rare Disorders:
http://neurotalk.psychcentral.com/forum2.html

Again welcome, looking forward to seeing you around. My thoughts and prayers are with you. :smileypray:

Darlene :hug:

Rrae 04-15-2012 02:04 PM

Hello Lala!
 
Welcome to NT! :hug:

You've found a great place for support! There are many caring people here. Darlene has pointed you to a good starting point. Make yourself at home and roam thru the forums.
Although I'm not familiar with your diagnoses, I'm sure there are others here who will have feedback to offer you. Also, you could try using the 'search' feature toward the top of the screen. Type in words of interest and it'll bring up posts from previous discussions.

Holler if you have any questions or need help finding your way around!
It's great to have you here!

Rae
:grouphug:

lalatas 04-16-2012 09:52 AM

Thanks guys!!! I'm slowly finding my way around the forum and have found a few helpful things. thanks for the arm welcome

Lala :))


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